Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Thursday, October 5, 2006

October 2006

Sunday, October 15, 2006 1:17 PM CDT

Dianna & I (Mom) made it home from OH.
We are both tired.
While at Children's Dianna had blood work.
Her platelets have dropped to 47.
We started her on the Enbrel.
(This will be a shot once a week)
Mom had to learn to give her the shot.
I gave her the first shot with the Nurse watching to be sure I did it correctly.
(I was so nervious! It was in her stomach area.)
They gave me a cream to numb the area before I gave her the shot.
Dianna was so sweet!
She told me I did great!
"Mommy, that did not hurt! Your a good Nurse!"
That made me feel so much better!!!
Also, Dianna will have to get weekly blood draws.
I pray that the medication will help.


Wednesday, October 4, 2006 12:56 AM CDT

Dianna and I are getting ready to return to Cincinnati Children's Hospital to begin the Pilot Study.
We leave October 12th and return October 13th.
This trip is short because we do not have to have many tests.
This is mainly to start the medication and teach me (mom) had to give her the shots. :-(
I hope that I can do it!
Pray that I get it down with out hurting Dianna too much.
I will update when we get back.