Day + 90 (Total # days in hospital= 99)

SATURDAY- 12/27/08:
Dianna had her Central Line removed and had a Port installed in her chest.
The surgeon went in on her left side, but could not get the line in, so he moved to her right side to install her Port.
She is VERY sore. :-(
But this is a step toward Dianna going home.
SUNDAY- 12/28/08:
Dianna was awake EVERY hour last night asking for pain medication. :-(
So- this morning the doctor increased her dose of pain medication.
Today was mostly a day of rest for Dianna.
MONDAY:
Last night was not good!
The line to her port came out! :-(
The nurses said this never happens with a NEW Port! :-(
Poor Dianna!
They had to give her the pain medication orally, then had to insert a new line.
Normally, this would not hurt much at all, BUT this is a new fresh wound and still very tender to the touch. :-(
Dianna was very brave and the nurses were able to insert another NEW line to her port.
Blood work- 12/29/08:
white blood cells: 2.9, red blood cells: 3.49, HGB: 10.4, platelets: 17, ABS Neut #: 1.769
TUESDAY:
Last night was MUCH better!
Dianna only asked for pain medication once during the night.
Today, Dianna went down to the cafeteria with us for lunch. :-)
She ate and was able to keep the food down. :-)
She is STILL having trouble keeping down her pills. :-(
I am being to think that not keeping down the medications/pills is a mental thing.
Blood work- 12/30/08:
white blood cells: 3.0, red blood cells: 2.89, HGB: 8.7, platelets: 12, ABS Neut #: 2.070

Day + 86 (Total days in hospital= 95)

Dianna & Family- CHRISTMAS DAY 2008!

Madison, Nic, Dianna, Kaelynn, Derek, Ryan, Courtney, Pawpa, Granny

Madison, Nicolaus, Dianna, Kaelynn, Derek, Ryan and Courtney

THE BOXER BOYS! Nicolaus, Derek (Cousin) & Ryan :-)

The Twins-- Kaelynn & Courtney

Madison (Cousin) & Dianna

Santa & Dianna

THURSDAY- CHRISTMAS: Dianna had a nice Christmas! (Even with being in the hospital.) Santa woke her up this morning and gave her some presents. :-) Next her family arrived and we had Christmas in the Transplant Offices. Family present today- Mommy, Daddy Bret, Pawpa Mike, Granny Connie, Aunt Mickie, Cousins- Derek & Madison, Brothers- Ryan & Nicolaus and Sisters- Courtney & Kaelynn. Dianna was laughing and really enjoyed having everyone here with her! She also joined the family down stairs in the cafeteria for lunch (she did not eat). Finally- the nurse changing her dressing on her Central Line in her thigh found that one of the stitches had come out. :-(

FRIDAY: This morning the doctor decided that he would have Dianna's Central Line removed and have a Port placed in her chest. (This is another step toward Dianna getting OUT of the hospital!!!) :-) YEA! She will not be happy tomorrow when she realizes that she is going to have another surgery! :-(

Pray that all goes smoothly with Dianna's surgery tomorrow!

Day + 81 (Total # days in hospital= 90)

*Dianna with Nicolaus, Kaelynn, Ryan and Courtney...Dianna had a good weekend. :-)
Sunday- Dianna went for a ride around the hospital to see the Christmas decorations.
The doctors reduced the steroids again. :-)
Her blood pressure has been much better.
The doctors were able to reduce some of her blood pressure medications! :-)
The BK Virus in her kidneys/bladder has shown a reduction...
The doctors believe that this is due to Dianna's body is beginning to fight the virus. :-)

Day + 78 (Total days in hospital= 87)

During this past weekend Dianna had several issues with high blood pressure and her kidneys were not working well due to all the extra medications. :-(
Blood work- 12/13/08:
white blood cells: 7.7, red blood cells: 3.46, HGB: 10.8, Platelets: 18, ABS Neut.#: 3.46
Blood work- 12/14/08:
white blood cells: 5.8, red blood cells: 3.03, HGB: 9.3, Platelets: 104
Monday:
Dr. Lenarsky reduced the amount of steroids and Prograf.
Dianna received a Platelet and red cell transfusion.
Blood work- 12/15/08:
white blood cells: 5.1, red blood cells: 2.66, HGB: 8.2, Platelets: 23
Tuesday:
Dianna's blood pressure was much better! Also her kidney function! :-)
Dianna received a Platelet transfusion.
Blood work- 12/16/08:
white blood cells: 9.9, red blood cells: 4.06, HGB: 12.2, Platelets: 61, ABS Neut.#: 8.910
Wednesday:
Dianna's blood pressure continues to do better!! :-)
Dianna received a Platelet transfusion.
Blood work- 12/17/08:
white blood cells: 6.6, red blood cells: 3.26, HGB: 9.8, Platelets: 20, ABS Neut,#: 5.412
Thursday:
The doctor's reduced the amount of blood pressure medication. Yea!
Her kidneys are also doing better- she did not have any blood in her urine today. :-)
Blood work- 12/18/08:
white blood work: 5.9, red blood cells: 2.77, HGB: 8.3, Platelets: 121, ABS Neut.#: 4.543

Day + 72 (Total days in hospital= 81)

This week has been just like a roller coaster.
Dianna will one minute feel good/OK, then the next minute feel bad/terrible.
It seems at this time the main issue is her high blood pressure-
due to the use of Steroids and Prograf (anti rejection drug).
The doctors are beginning to reduce the Steroids again-
Also trying to find the right/best combination of medications for Dianna's blood pressure.
Dianna did have a little GVH (graft vs. host) on her skin last week.
BUT- the GVH seems to have cleared. :-)
The doctors said all the tests that they have run for infections have come back clear/good. :-)
The virus that she had- BK Virus (in her bladder/kidneys) is still there, but they feel that her immune system is begging to work.
The doctors said that she probably had this virus before transplant-
Her immune system was able to take care of it till the transplant wiped out her immune system.
The doctors are HOPING that HER immune system will again take care of the virus!
**MORE WAITING!!!**
Blood work 12/11/08:
white blood cells: 5.8, red blood cells: 2.49, HGB: 7.6, platelets: 14, ABS Neut.#: 3.712
(Dianna had a red blood & platelet transfusion this evening)
Blood work 12/12/08:
white blood cells: 5.8, red blood cells: 4.05, HGB: 13.0, platelets: 78, ABS Neut.#: 3.770

Day + 68 (Total # of days in hospital= 77)

SATURDAY:
Dianna's stomach was hurting very bad, even with the pump with pain medication. :-(
Dr. Goldman said Dianna could go down stairs to see Santa...
but she did not want to go because her stomach was hurting too bad. :-(
She could not keep anything down (even her meds.).
Blood work- 12/06/08:
white blood cells: 3.1, red blood cells: 4.26, HGB: 13.4, platelets: 7, ABS Neut. # 2.077
SUNDAY:
Again, Dianna having stomach pain. :-(
Dr. Goldman ordered an increase in he pain medication and a platelet transfusion.
Dianna began to feel better this evening, BUT...
she began to see things. :-(
Late night- Dianna began to have diarrhea. :-(
Blood work- 12/07/08:
white blood cells: 2.3, red blood cells: 4.08, HGB: 12.5, platelets: 6, ABS Neut. #: 1.081
MONDAY:
Dianna's diarrhea finally stopped this morning.
Dr. Goldman ordered IV meds., but this was still not enough medication for her blood pressure.
Thank goodness today Dianna is able to keep down the medication given by mouth!
*She was about to have to go back to PICU! :-(
She was given her regular blood pressure medication plus a little extra and her blood pressure finally came back down. :-)
Dr. Goldman spoke with the "blood pressure specialist" Dr. Quan, and he OK'd the IV blood pressure medication to be given here on the Transplant floor, on an as needed basis. :-)
I hope that she will NOT need it again.
Blood work- 12/08/08:
white blood cells: 1.6, red blood cells: 3.88, HGB: 11.9, platelets: 106, ABS Neut. #: 0.880

Day + 65 (Total # of days in hospital= 74)

Dianna is still having pain in her stomach. :-(
YESTERDAY:
The doctor ordered a pump for her pain medication.
She gets medication every hour and if she feels she needs more-
she can push a button for extra meds once an hour.
All the tests have not come back yet...
They did find one infection, but it was minor and only needed an antibiotic.
TODAY:
Dianna did receive a red blood transfusion-
It was ordered this morning, but did not arrive till the evening. :-(
**There is a shortage of blood and platelets here!**
Because the transfusion was started late in the day- this caused Dianna's blood pressure to go up! :-(
So then she had to receive extra medication tonight-
I hope that it comes back down!

Day + 63 (Total days in hospital= 72)

Dianna is back on the Transplant Floor! Yea! :-)
She was moved yesterday afternoon from the PICU to the Transplant Floor.
Dianna is in a NEW room- Room #1211
And has a NEW phone # 972-566-6743
She was having stomach pain last night. :-(
Still hurting this morning-
The doctor is running several tests to be sure she does not have an infection, virus, etc...
I am praying it is something minor.