Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, September 30, 2008

Day -2

This morning at 4:00am, Dianna started "Cyclosporine".
It is used to decrease the immune system's response to a transplant.
Today, NO Cytoxan. Yea!
Dianna received Fludarbine & ATG.
She is still having bad haedaches. :-(
Tonight around 9:30pm Dianna was sick at her stomach again. :-(

Tuesday, Day -1
For Dianna- Rest day & IVIG
For Nicolaus- Pre-OP appointment

Monday, September 29, 2008

Day -3


Labs from 9/27/08
white blood count: 0.4, red blood count: 3.45, HGB: 11.4, Platelets: 55, Neut #: 0.400

*Dianna did receive a blood transfusion on Friday and platelet transfusion today.

Saturday- Dianna did ok, she continues to have bad headaches off and on during the day/night.

Sunday- Today is the last day of Cytoxan!
Dianna is about the same as yesterday.

Tomorrow, Monday- will be only the Fludarabine & ATG.

Saturday, September 27, 2008

Day -5

Dianna had a much better day today!
She was feeling more like herself. (She was picking on Mom this afternoon.)
Dr. Lenarsky was pleased with how well she did yesterday with the chemo.
She did just have a very bad headache; but the nurse quickly gave her some pain medication and she is now asleep.
I am praying that she feels better tomorrow.

Thanks to everyone that signed Dianna's guestbook, she enjoys reading the messages.

Friday, September 26, 2008

Day -6

Today, Thursday is Day -6
Dianna begins Fludarabine & Cytoxan

Yesterday, after the Central Line placement Dianna was not able to keep any food or drink down.
Everything that she tried came back up.
The extra pain medication did not agree with her stomach.

This morning was the same...
I was hoping that she would be feeling better and able to eat, but no such luck.

She has slept most of the morning and is still sleeping now. (just wakes to go to bathroom then right back to bed)

Tuesday, September 2, 2008

September 2008

Wednesday, September 24, 2008 11:52 AM CDT

We are in the hospital!
Dianna had a platelet transfusion yesterday- Tuesday.
This morning, she had her surgery to insert her Central Line.
This will allow the doctors/nurses to draw blood and give her IV's or medication with out having to poke her each time.
It took much longer to complete the surgery than the surgeon first thought. He told us he should be out in 45 minutes to an hour, but it was two hours before Dr. Hermon came out to talk with us.
(I was getting worried!)
He said Dianna's vein on the side he wanted to use was the size of a ball point pen tip.
So now she has two extra holes with stiches. :-(
At this time she is still sleeping, because they gave her extra medication for the pain.


Wednesday, September 17, 2008 9:11 AM CDT

Just a short update...

Dianna had a check up on Monday, Sept. 15th.
She was able to tour the Transplant Floor.
During the tour she got to meet the nurses that will be taking caring of her starting next Tuesday.

I can not believe that it is less than a week till we check in to the hospital (Medical City Dallas).

Please keep us in your prayers.
Thanks!


Monday, September 8, 2008 4:10 PM CDT

Dianna and Nicolaus had appointments on Thursday, September 4th.

Dianna's labs are- white blood count: 5.1, red blood count: 2.70, HGB: 9.70, platelets: 37, NE#: .90, NE: 17.3

Dr. Goldman gave me a copy of th HLA Results for Dianna & Nicolaus- (Nicolaus is a 11 out of 12 match for Dianna.) :-)

Dianna:
HLA-A: 1,2
HLA-B: 8,15
HLA-Cw: 3,7
HLA-DRB1: 0301/28,0401
HLA-DRB3: 0101/11
HLA-DRB4: 0103
HLA-DRB5:
HLA-DQB1: 0201,030201

Nicolaus:
HLA-A: 02,
HLA-B: 08,15
HLA-Cw: 03,07
HLA-DRB1: 0301/28,0401
HLA-DRB3: 0101/11
HLA-DRB4: 0103
HLA-DRB5:
HLA-DQB1: 0201,030201

We are still on target to go into the hospital on September 23rd and have the Central Line placement on the 24th.