Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, February 24, 2009

Day + 146 (Total days in hospital= 155)

**Mitchell Musso and Dianna**
MONDAY:
"Mitchell Musso"- He plays Oliver on Hannah Montana's Disney TV Show was at the hospital and came to Dianna's room. :-)
Dianna was very excited!
He sat on the couch with Dianna and visited for a few minutes, gave her an autograph and a HUG! :-)
Today, Dianna was still having problems with her stomach hurting. :-(
TUESDAY:
This morning the doctor tried a new medication for Dianna's stomach.
It is to help with the nausea and make her feel a little hungry.
So far...it seems to be helping. :-)

Sunday, February 22, 2009

Day + 144 (Total # of days in hospital= 153)

Dianna is out of the PICU...
she was moved to a room on Friday, 2/20.
She is now in Room 618 in Building D.
Her new phone # 972-566-8718.
Dianna had a good day on Friday, and felt like going to the playroom. :-)
Saturday and Sunday, she has been having problems with her stomach and high blood pressure.
The seizures that she had on Thursday, 2/12- have got her body out of wack...
She is back to having problems eating/keeping things down (food & medications) and high blood pressure. :-(
Please pray that Dianna will begin to feel better and her blood pressure will level out again.

Tuesday, February 17, 2009

Bret's E-mail-- Thurs. 2/12/09

Greetings to everyone who has followed Dianna’s journey, if you are receiving a version of this e-mail twice my apologies, computer issue.

We had a set back today, just a couple of hours before she was scheduled to be released which means that Dianna and Nanette are still at Medical City . This morning Dianna developed a series of seizures and was rushed to the ICU with extremely high blood pressure. We have been given no definite reason why this happened and are still waiting on test results. At this time the blood pressure has fallen back into line and Dianna was sleeping. The events of the day were extremely stressful on everyone but especially so on Nanette.

We are hoping they both get some rest tonight and starting tomorrow we can get back on the track to getting them home soon. In talking with our Associate Pastor and good friend Truett King tonight he pointed out that God was watching out for us by this happening while still at the hospital and not after everyone had come home. Had this happened at home the results could have been much worse.

For those of our great friends who have followed this process and prayed prayers, sent gifts, notes, cards etc I would like to say “Thank You”, these uplifting acts have been good for both Dianna and Nanette.

I am sure when everything calms down Nanette will resume updating the website so watch for more news


Bret L. Foster
District Manager South Central Region
Phone 972-821-7256
Fax 630-438-8006

Wednesday, February 11, 2009

Day + 133 (Total days in hospital= 142)

Dianna gets to go HOME- Thursday!
(Unless something unusual comes up tonight)
*I have been afraid to post this again after the last time and she did not get to go home.
Dianna will still need IV fluids, blood pressure checks, etc at HOME- so Mom has been learning to do all this (we will have a home health care helping/checking me the first week or so)
ALSO- Dianna will have to return to the doctor's office 3 times a week.
If her kidneys get better, then this will be reduced.
BUT- if her kidneys do not get better, Dianna will have to go back into the hospital for another treatment (that will require having another Central Line inserted)
PRAY-- that Dianna's kidneys continue to heal AND that she will not have any more complications due to her Bone Marrow Transplant!

Tuesday, February 3, 2009

Day + 125 (Total days in hospital= 134)

We received fairly good news on part of the kidney biopsy...
The kidney specialist said that the test showed that her kidneys were being poisoned by a medication that she was taking; BUT that stopping the medication now should let her kidneys heal. :-)
It could take a while for the kidneys to heal, but at least it is correctable. :-)
*I am glad that we did the biopsy!*
We still have one more report/test from the biopsy, but it may take another week to get the results.

Monday, February 2, 2009

Day +124 (Total days in hospital= 133)

FRIDAY:
The surgery/biopsy seemed to go fairly well...
The surgeon had to put in a new needle in her port (it had come out).
He said that the kidney looked fine- now just waiting on lab reports.
Dianna slept all day.
SATURDAY:
Dianna is very sore, but seems to feel OK.
This evening Dianna got up and walked 5 laps around the transplant floor.
SUNDAY:
Dianna is still sore, but really perked up when her brother- Nic and sisters- Courtney & Kaelynn arrived after church! :-)
She got up and walked 10 laps around the transplant floor with them. :-)
MONDAY:
I hope to get some of the lab reports from the biopsy today.
I have been praying that we get good news.

FYI:
Today is my Anniversary!
Bret and I have been married "8 years" today!!! :-)