Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, August 2, 2006

August 2006

Monday, August 21, 2006 2:41 PM CDT

We made it home from Cincinnati Children's Hospital Saturday Night.
Dianna and Mom were very tired.
Dianna is still sore from her Bone Marrow Biopsy. :-(
I will not know results of all the tests for 10 days to two weeks.
I will update when I know....


Tuesday, August 15, 2006 11:22 AM CDT

Wednesday, Dianna and Mom leave for Cincinnati Children's Hospital for the final screening evaluation.
We are looking into a Pilot Study.
(If she qualifies for the study after this final testing.)
I will update when I get the results.

Sunday, July 2, 2006

July 2006

Monday, July 24, 2006 12:18 AM CDT

We went Wednesday, for Dianna's blood work.
Her counts have dropped. :-(
(Platelets=59)
I pray that they will go back up!
I did have good news today...
While we were at the doctors on Wednesday, they tested Dianna's brother Nicolaus.
The doctor just called and he is a 5 out of 6 match for her transplant.
He said this is good with Nicolaus being related to her.
This is a blessing! :-)


Friday, July 14, 2006 10:12 PM CDT

Dianna finally lost her FIRST tooth! :-)
She was so excited!!

Friday, June 2, 2006

June 2006

Monday, June 26, 2006 1:37 PM CDT

Another Busy Summer!
On the 16th- We (Dianna,Daddy Bret, Mommy, Ryan, Nicolaus, Courtney and Kaelynn) headed out to Ryan, OK for the Ryan Rodeo.
17th: We left for Oklahoma City, OK to Frontier City.
We spent the day riding rides then to our hotel to clean up. Next, to Brick Town for dinner.
18th: We headed to Lawton, OK for camping and swimming.
19th: We visited the Museum of the Great Plains, drove out to see the Buffalo, Long Horn Cattle and Prairie Dogs and finally to Medicine Park, OK for more swimming.
20th: We drove up to Mount Scott (it is beautiful!) then back to Medicine Park to swim and FINALLY back to PawPaw and Granny's House to pick up the puppies (Bell & Scooter).
We had a great time, but now I need a vacation from my vacation.


Wednesday, June 7, 2006 10:15 AM CDT

Sorry it has been so long for an update.
We were so busy with all the end of school activites, I got behind on many things.
The last day of school was May 25th.
We left on May 26th to take a vacation.
Dianna, Nicolaus, Mommy, Daddy Bret, Aunt Mickie, Cousin Derek and Cousin Madison went to San Antonio, TX.
We had a GREAT time!
Friday, we stopped in Luckembach, TX on our way to San Antonio.
Saturday, we went to Fiesta Texas (all day!).
Sunday, we drove around down town by the Alamo, then we walked around the Market Area and finally to the River Walk for dinner and rode in the tour boat.
Monday, we went to Splash Town (a large water park). We stayed here all day, then about 4:30 PM took Daddy Bret to the airport (he had to work on Tuesday).
Tuesday, we went to the Natural Bridge Caverns (caves you can tour). That was very interesting.
Finally, we stopped in San Marcus, TX at the Aqua Marina Springs and walked around. (Did not have time to ride the glass bottom boats- Madison had a soft ball game, so we headed home.)

Thursday, March 2, 2006

March 2006



Tuesday, March 14, 2006 11:12 AM CST

Dianna had a nice birthday, but her Birthday Party it not till this Friday.
She is going to have a skate party.

This past weekend we went to visit Granny and PawPaw in Ryan, OK.
Mickie, Derek and Madison were there too.
Saturday, we went to Second Monday in Bowie, TX and walked and shopped most of the day.
Then back home to Granny and PawPaw's House.
The kids rode the Go Kart and Four Wheeler, but the adults rested.
Sunday, after church Dianna opened her presents and we had cake.
Mickie and I(Mommy) went home that evening.
The kids got to stay with Granny and PawPaw because they are on "Spring Break"! :-)


Wednesday, March 1, 2006 9:32 AM CST

I am glad that February is over.
Dianna, Daddy Bret and Me (Mommy) took turns being sick.
(Nicolaus was lucky & missed it)
Dianna was very sick Feb. 7th & 8th.
Her fever at night got up to 104.
The weekend of the 18th- Dianna was to attend Junior Drill Team Camp & Nicolaus was to have Baseball Tryouts, but we had ice Friday night so they cancelled both.
The weekend of the 25th- Dianna was able to attend the Junior Drill Team Camp.
She had a wonderful time!
At the end of the Camp the parents got to watch the girls preform the dance that they learned that morning.
While Dianna was in her Camp, Nicolaus was having his Distict Science Olympid.
(He placed 3rd in his school competition, which means that he moved on to the District Level)
He did not place in District but I was very proud of him!
Now, it is time to get ready for DIANNA'S Birthday on March 12th!
She will be 8 yrs old! :-)

Wednesday, February 8, 2006

February 2006

Tuesday, February 7, 2006 12:53 AM CST

The month of January has been slow except for doctor appointments for Dianna and The Fort Worth Stock Show.
Her platelets have dropped a little again.
(Pray they go back up)
Dianna and Nicolaus went to stay last weekend with Aunt Mickie, Derek and Madison.
It was Mom and Dad's Anniversary. We were going to do something romantic, but did nothing because we both had colds. :-(
Dianna and Nicolaus had a great time playing with their cousins.
Derek and Madison show sheep and goats.
We went to see them at the Fort Worth Stock Show the week before.

Thursday, January 12, 2006

January 2006

Wednesday, January 4, 2006 11:22 AM CST

Today is the first day back to school from Christmas Break.
Dianna and Nicolaus went to their dad's for Christmas this year.
They left Thursday, Dec. 22nd after Dianna's doctor appointment.
Then returned on Monday, Dec. 26th.
We (Mom, Daddy Bret, Ryan, Courtney and Kaelynn) meet their dad, David in Denton, TX and drove from there to Decatur, TX. for lunch with Granny, Pawpaw, Mickie, Derek and Madison.
After a little shopping we drove on the Ryan, OK for Christmas at Granny & Pawpaw's house.
We left Tuesday evening to head home and to have our family Chirstmas.
Next- Up early Wednesday morning to drive to Henderson, TX.
to have Christmas with Nana and Pawpaw.
Finally heading home again on Thursday evening.
The kids all had gift cards to spend, so Saturday was a day full of shopping!
Then we spent New Year's Eve home.
We invited our neighbor, Bill over for dinner.
We snacked all night.
New Year's Day- Gary and his daughters spent the day with us.
(Guys watched football all day.)
I made snack food all day.
Finally, back to normal?!?

Monday, December 12, 2005

December 2005


Monday, December 19, 2005 8:58 PM CST

Another busy weekend...
Friday, Nicolaus had a birthday party and Ryan, Courtney and Kaelynn arrived.
Also, Nic's friend Cody spent the night.
Saturday, we got up early. Dropped off Cody and drove to Sherman, TX. to see my Uncle Dickie in the hospital. (He had four by-passes done on Friday) It was good to see him, but I know it will be awhile before he feels like himself again.
(He is in our thougths & prayers!)
Next, we drive back so Courtney can go to her basketball game & Dianna can attend her friends birthday skate party.
Sunday, up early again for church.
Ryan's church choir group was singing during church in the morning service and preforming again that evening. Following our Bible Study, Nicolaus' grade was having their Christmas Party. They had lunch then went caroling at a Retirement Center and finally went to a movie.
We also went to visit Doris at the Nursing Home and give her a Christmas present.
Bill (her husband) was there & we gave him his Christmas gift also.
It was 8:30 PM before we finally arrived home & still had to feed & get kids ready for bed.
I was READY for bed!


Wednesday, December 14, 2005 10:33 AM CST

Sorry it has been a while from the last entry!
We have been very busy at our house.

To begin with we had 22 people at our house for Thankgiving Lunch. It was a lot of fun.

Next we were getting Christmas decoration up and shopping for Christmas gifts.

Dec. 3rd was the Old Town Christmas Stroll in Lewisville. It has many activites for the kids. And a Christmas parade.

Nicolaus, Courtney and Kaelynn sang at church on Dec. 4th.
(Dianna was to sing also, but had a bug that day and had to stay home with Mom.)

Dec. 13th, Nicolaus had his Orchestra Winter Concert. So Granny & PawPaw came down from Oklahoma to watch.
Before the concert- They picked Dianna up from school and went to see Santa. Dianna told Santa what she wanted for Christmas and had her picture made. (It turned out very good)
Finally we went to see Nicolaus play his violin. He did great! We are very proud of him.