Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, January 2, 2007

January 2007

Monday, January 29, 2007 9:16 PM CST

On January 9th, Dianna rode in the "Chisholm Challenge For Special Riders" at the Fort Worth Stock Show & Rodeo.
In the English Equitation for Dianna's level she received 5th place.
In the Trail Course for Dianna's level she received 2nd place.
We are very proud of her!!!
Dianna had a large cheering section: Mom, Daddy Bret, Nicolaus, Granny, Pawpaw, Nana, Aunt Mickie, Cousin Derek, Cousin Madison and a dear friend John.
It was a long day, but very rewarding to watch.

On January 17th, Dianna, Mom and Tammy went to Cincinnati.
We almost did not get out of Dallas due to ice and snow.
The plane was delayed, but did leave.
We had a check up appointment on the 18th, then we went to see the Aquarium and out to dinner.
On Friday, the 19th Dianna had a bone marrow biopsy that morning.
Then late morning an appointment with Dr. Rose to check on her endocrine levels.
Next, back to the hotel for a long nap!
Finally, Saturday we had a late check out, so we slept in then back to the airport to return home. :-)

Labs from past two weeks...

1/19/07:
white blood counts-4.5, red blood counts-3.13, hgb-10.7, platelets-40

1/24/07:
white blood counts-4.7, red blood counts-3.12, hgb-11.1, platelets-53


Monday, January 8, 2007 10:35 AM CST

Happy New Year!

Dianna is getting ready to ride in the "Chisholm Challenge For Special Riders" (competitive horse show) at the Fort Worth Stock Show & Rodeo on January 9th.
Her events are English Equitation and Trail Course.

I will update with pictures soon. :-)

NEXT WEEK (Jan.17-20)- Dianna, Tammy (Mom's Best Friend) and Mom return to Cincinnati Children's Hospital to see doctors and for testing.
I will update on this too.

LABS from past two weeks...

12/27/06:
white blood counts-5.7, red blood counts-3.37, hgb-11.4, platelets-49

1/03/07:
white blood counts-4.9, red blood counts-3.33, hgb-11.6, platelets-57

Thursday, December 28, 2006

December 2006

Wednesday, December 27, 2006 1:07 PM CST

Dianna had a wonderful Christmas.
She received everything she wanted and more.

Friday, Dec. 22nd the family went to Henderson TX for Christmas with Pawpaw John, Nana, Memaw and Uncle Doug.
Sunday, Dec. 24th we headed home to attend Christmas Eve Candle Service at FBC Lewisville.
After the service we opened gifts and watched "It's A Wonderful Life".
Christmas morning, Santa had delivered gifts.
We checked out everything then headed to Ryan, OK to see Pawpaw Mike, Granny and Mickie. (Derek and Madison spent Christmas with their dad this year.)

Finally, Tuesday, Dec. 26th we met Grandpa Van.
Nicolaus and Dianna went with him to visit thier dad and have Christmas with him.

LABS from past two weeks...

12/13/06:
white blood counts-5.8, red blood counts-3.27, hgb-11.1, platelets-45

12/20/06:
white blood counts-4.3, red blood counts-3.43, hgb-11.9, platelets-50


Tuesday, December 12, 2006 9:31 PM CST

Sorry, it has been a few weeks for an update.
We have either been sick &/or getting ready for Christmas.

Here are the labs from the past three weeks...

11/22/06:
white blood counts-3.9, red blood counts-3.30, hgb-11.6, platelets-69
11/29/06:
white bllod counts-5.0, red blood counts-3.30, hgb-11.4, platelets-53
12/06/06:
white blood counts-5.3, red blood counts-3.43, hgb-11.7, platelets-53

Tuesday, November 14, 2006

November 2006

Monday, November 20, 2006 8:57 PM CST

Hello!
Just wanted to let you know Dianna's counts are staying about the same for now.
Dianna, Nicolaus and Bret are in Oklahoma with my parents.
I had to return home Sunday night to work Monday and Tuesday, but will go back Tuesday PM.
Nicolaus, Bret and PawPaw are hunting.
Dianna and Granny are playing.
I hope everyone has a Happy Thanksgiving!

Dianna's Labs-
11/15/06:
white blood count-4.7, red blood count-3.34, hgb-11.8, platelets-52


Monday, November 13, 2006 8:00 PM CST

Here is a list of Dianna's labs for the past few weeks.

10/13/06:
white blood count- 4.0, red blood count- 3.47, hgb- 12.0, platelets- 47, anc- 1280

10/20/06:
white blood count- 5.2, red blood count- 3.41, hgb- 11.6, platelets- 59, anc- 2200

10/27/06:
white blood count- 4.4, red blood count- 3.50, hgb- 12., platelets- 59, anc- 1400

11/01/06:
white blood count- 4.6, red blood count- 3.39, hgb- 11.8, platelets- 54, anc- 1700

11/08/06:
white blood count- 4.7, red blood count- 3.32, hgb- 11.4, platelets- 59, anc- 1600

Dianna seems to be feeling fine; she just gets tired quickly.

Thursday, October 5, 2006

October 2006

Sunday, October 15, 2006 1:17 PM CDT

Dianna & I (Mom) made it home from OH.
We are both tired.
While at Children's Dianna had blood work.
Her platelets have dropped to 47.
We started her on the Enbrel.
(This will be a shot once a week)
Mom had to learn to give her the shot.
I gave her the first shot with the Nurse watching to be sure I did it correctly.
(I was so nervious! It was in her stomach area.)
They gave me a cream to numb the area before I gave her the shot.
Dianna was so sweet!
She told me I did great!
"Mommy, that did not hurt! Your a good Nurse!"
That made me feel so much better!!!
Also, Dianna will have to get weekly blood draws.
I pray that the medication will help.


Wednesday, October 4, 2006 12:56 AM CDT

Dianna and I are getting ready to return to Cincinnati Children's Hospital to begin the Pilot Study.
We leave October 12th and return October 13th.
This trip is short because we do not have to have many tests.
This is mainly to start the medication and teach me (mom) had to give her the shots. :-(
I hope that I can do it!
Pray that I get it down with out hurting Dianna too much.
I will update when we get back.

Wednesday, September 6, 2006

September 2006

Tuesday, September 5, 2006 10:25 PM CDT

Cincinnati Children's Hospital called today.
Dianna was accepted to the Pilot Study for Enbrel.
I just pray that it works.
Her platlet counts are dropping and it is scary to think about our alternative if the Enbrel does not work.
Please keep us in your prayers as we work out finances to get Dianna & I back and forth from Dallas to Cincinnati.
We must go to start the medication (soon), then return every three months for check-ups.
Also pray that the study works as the researchers plan.
Finally, pray that Dianna understands why she is getting so many shots and blood draws. (That we are only trying to HELP her, not hurt her.)

Wednesday, August 2, 2006

August 2006

Monday, August 21, 2006 2:41 PM CDT

We made it home from Cincinnati Children's Hospital Saturday Night.
Dianna and Mom were very tired.
Dianna is still sore from her Bone Marrow Biopsy. :-(
I will not know results of all the tests for 10 days to two weeks.
I will update when I know....


Tuesday, August 15, 2006 11:22 AM CDT

Wednesday, Dianna and Mom leave for Cincinnati Children's Hospital for the final screening evaluation.
We are looking into a Pilot Study.
(If she qualifies for the study after this final testing.)
I will update when I get the results.

Sunday, July 2, 2006

July 2006

Monday, July 24, 2006 12:18 AM CDT

We went Wednesday, for Dianna's blood work.
Her counts have dropped. :-(
(Platelets=59)
I pray that they will go back up!
I did have good news today...
While we were at the doctors on Wednesday, they tested Dianna's brother Nicolaus.
The doctor just called and he is a 5 out of 6 match for her transplant.
He said this is good with Nicolaus being related to her.
This is a blessing! :-)


Friday, July 14, 2006 10:12 PM CDT

Dianna finally lost her FIRST tooth! :-)
She was so excited!!