Day -5

Dianna had a much better day today!
She was feeling more like herself. (She was picking on Mom this afternoon.)
Dr. Lenarsky was pleased with how well she did yesterday with the chemo.
She did just have a very bad headache; but the nurse quickly gave her some pain medication and she is now asleep.
I am praying that she feels better tomorrow.

Thanks to everyone that signed Dianna's guestbook, she enjoys reading the messages.

Day -6

Today, Thursday is Day -6
Dianna begins Fludarabine & Cytoxan

Yesterday, after the Central Line placement Dianna was not able to keep any food or drink down.
Everything that she tried came back up.
The extra pain medication did not agree with her stomach.

This morning was the same...
I was hoping that she would be feeling better and able to eat, but no such luck.

She has slept most of the morning and is still sleeping now. (just wakes to go to bathroom then right back to bed)

September 2008

Wednesday, September 24, 2008 11:52 AM CDT

We are in the hospital!
Dianna had a platelet transfusion yesterday- Tuesday.
This morning, she had her surgery to insert her Central Line.
This will allow the doctors/nurses to draw blood and give her IV's or medication with out having to poke her each time.
It took much longer to complete the surgery than the surgeon first thought. He told us he should be out in 45 minutes to an hour, but it was two hours before Dr. Hermon came out to talk with us.
(I was getting worried!)
He said Dianna's vein on the side he wanted to use was the size of a ball point pen tip.
So now she has two extra holes with stiches. :-(
At this time she is still sleeping, because they gave her extra medication for the pain.

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Wednesday, September 17, 2008 9:11 AM CDT

Just a short update...

Dianna had a check up on Monday, Sept. 15th.
She was able to tour the Transplant Floor.
During the tour she got to meet the nurses that will be taking caring of her starting next Tuesday.

I can not believe that it is less than a week till we check in to the hospital (Medical City Dallas).

Please keep us in your prayers.
Thanks!

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Monday, September 8, 2008 4:10 PM CDT

Dianna and Nicolaus had appointments on Thursday, September 4th.

Dianna's labs are- white blood count: 5.1, red blood count: 2.70, HGB: 9.70, platelets: 37, NE#: .90, NE: 17.3

Dr. Goldman gave me a copy of th HLA Results for Dianna & Nicolaus- (Nicolaus is a 11 out of 12 match for Dianna.) :-)

Dianna:
HLA-A: 1,2
HLA-B: 8,15
HLA-Cw: 3,7
HLA-DRB1: 0301/28,0401
HLA-DRB3: 0101/11
HLA-DRB4: 0103
HLA-DRB5:
HLA-DQB1: 0201,030201

Nicolaus:
HLA-A: 02,
HLA-B: 08,15
HLA-Cw: 03,07
HLA-DRB1: 0301/28,0401
HLA-DRB3: 0101/11
HLA-DRB4: 0103
HLA-DRB5:
HLA-DQB1: 0201,030201

We are still on target to go into the hospital on September 23rd and have the Central Line placement on the 24th.

July 2008

Monday, July 28, 2008 7:22 AM CDT

Dianna had an appointment with her Hemotoligist/Oncologist on Thursday, July 24th.
Her labs are- white blood count: 4.7, red blood count: 3.03, HGB: 10.60, platelets: 40.

We now have a date for transplant! October 1st...

She will begin having doctor's appointments the week of September 15th.
Then on September 24th, she is to have a Central line placement.
And on September 25th, she begins the Fludarabine/ Cytoxan for four days.
On September 29th, she will have only Fludarabine.
On September 30th, a day of Rest.

Finally on October 1st- Transplant Day: Day 0.

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Tuesday, July 22, 2008 7:46 AM CDT

Dianna had another hearing test on Monday.
The results show that her hearing is getting worse.
The doctor feels we should look into surgery and/or hearing aids.
This will have to wait till after her bone marrow transplant.
I hate that she has something else not in her favor and looking at another possible surgery.
Please keep Dianna in your prayers!

June 2008

Tuesday, June 3, 2008 9:00 PM CDT

Dianna had a doctor's appointment today.
Her counts had dropped slightly from last month.

Dianna's Labs (June 3, 2008)-
white blood count: 4.9, red blood count: 2.67, HGB: 9.40, platelets: 38

We are still working on the paperwork process for the bone marrow transplant.

The doctors still believe we will begin around September or October.

I will update when I know more...

Please keep Dianna in your prayers- THANKS!!!

May 2008

Tuesday, May 20, 2008 4:49 PM CDT

It has been a LONG time for an update on Dianna!

This year has not been good for Dianna's platelet counts...

Dianna's Labs (April 29, 2008)-
white blood count: 5.3, red blood count: 2.71, HGB: 9.3, platelets: 43

We have started the paperwork process for bone marrow transplant with the insurance & hospital. :-(
The doctors said it could take a month or two for this process to be completed.

They are looking at transplant for Dianna around September or October.

We are now to see her doctor once a month for blood work.

I will update when I know more...

July 2007

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Sunday, July 22, 2007 10:40 PM CDT

Update from our trip to Cincinnati...

The entire family went to Cincinnati on this trip (Dianna, Daddy Bret, Mom, Ryan, Nicolaus, Courtney and Kaelynn).
It was some good family time, but a lot of driving.

We left Saturday, July 7th from Granny and PawPaw's house in Ryan, OK. and drove to Springfield, MO. While in Springfield, we attended a Minor League Baseball Game.

Sunday, July 8th we drove to St. Louis, MO. There we went up in the Arch and looked around the museum in the bottom.

Monday, July 9th we drove to Cincinnati, OH.
We made several stops along the way.

Tuesday, July 10th we drove to Dayton, OH and went to see where the Wright Brothers have a museum and the Air Force Museum.

Wednesday, July 11th Dianna had three different appointments. (one right after the other)

**The doctor suggested that we tour the transplant center on our next visit in three months! :-( **
(Please keep Dianna in your prayers!)

After Dianna's appointments we went to the Cincinnati Zoo, then we drove to Kentucky to visit the Newport Aquarium.

Thursday, July 12th we drove to Nashville, TN. We had dinner with Bret's cousin.

Friday, July 13th we drove to Memphis, TN and took the tour of Graceland. (Mom's favorite part!)
Next, we drove to Little Rock, AR and the kids swam and had pizza at the hotel pool.

Saturday, July 14th we drove back to Ryan, OK to pickup the puppies.

Sunday, July 15th we drove HOME!

Monday, July 16th- July 20th: Dianna attended Vacation Bible School and Nicolaus was a Class Helper for VBS.


Dianna's Labs (July 11, 2007):
white blood count: 5.9, red blood count: 3.32, HGB: 11.7, platelets: 36, neutrophil absolute: 1.71

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Tuesday, July 3, 2007 8:40 AM CDT

Last week was very busy...
Dianna, Courtney and Kaelynn attended "Kidz Praize Dayz" at our church.
It is a week of learning songs in the mornings, then the afternoons doing fun activities (like swimming, skating, putt putt and Chuck E Cheese).
Then on Friday night the kids put on their show!
Nicolaus and Ryan were Music Police (Leaders) this year.
The 7th thru 12th grades help lead the 1st thru 6th grades.
They had a great week! :-)

Today, we are getting ready to leave for Cincinnati Children's.
Dianna has a check up next week.
We plan on going to Ryan, OK for a couple of days then start the long drive on Saturday AM.
Pray for a safe trip and that Dianna has a good report.
Thanks,
Nanette