THURSDAY:
Dianna had Hemo dialysis today--
it went smoothly...
BUT the doctor believes she might have an infection in her Peritoneal.
(Running more tests!)
FRIDAY:
YES--
Dianna has an infection in her Peritoneal Catheter! :-(
ANOTHER SURGERY!!! :-(
The doctors want to remove the catheter ASAP,
to keep the bacteria from getting into her blood stream.
Dianna did well with the surgery--
the doctors put her on antibiotics to be sure the bacteria does not spread.
and they are keeping her sedated for the next few days till her wound begins to heal.
BUT------
Going up to visit Dianna after surgery...
Granny (my Mom) fell AND fractured her arm!!!!!! :-(
NOW I have two from my family at Medical City Dallas!
Saturday:
I spent all day running back and forth between Dianna's room and my mother's room.
Dianna had Hemo dialysis again today.
Granny has been in a lot of pain!
She will need surgery on her arm next week...
Saturday, May 9, 2009
Wednesday, May 6, 2009
Day + 217
SATURDAY, SUNDAY & MONDAY:
Dianna was on CVVH dialysis and did well, except
for Monday night when she was taken off-- she got a fever for a few hours.
Also-- she had a feeding tube inserted into her nose.
She is doing OK with the tube--
the doctors are wanting to get her stomach and bowels working again.
TUESDAY:
Dianna had Hemo dialysis today, but it did not work...
her blood pressure dropped too low, so she had to stop the dialysis.
The doctor is reducing the amount of medications to keep her sedated and
the amount of TPN; but increasing the amount of her feeding tube.
Dianna had a fever again tonight.
WEDNESDAY:
Dianna had Hemo dialysis again today and she did much better.
Reduced-- the amount of sedation and TPN.
Increased-- the amount of feeding tube.
**Still praying for MORE good days!**
Dianna was on CVVH dialysis and did well, except
for Monday night when she was taken off-- she got a fever for a few hours.
Also-- she had a feeding tube inserted into her nose.
She is doing OK with the tube--
the doctors are wanting to get her stomach and bowels working again.
TUESDAY:
Dianna had Hemo dialysis today, but it did not work...
her blood pressure dropped too low, so she had to stop the dialysis.
The doctor is reducing the amount of medications to keep her sedated and
the amount of TPN; but increasing the amount of her feeding tube.
Dianna had a fever again tonight.
WEDNESDAY:
Dianna had Hemo dialysis again today and she did much better.
Reduced-- the amount of sedation and TPN.
Increased-- the amount of feeding tube.
**Still praying for MORE good days!**
Friday, May 1, 2009
Day + 212
This has been a long week...
TUESDAY:
Dianna had PD only and it worked fine at a low concentration.
WEDNESDAY:
The doctor increased the concentration and fluid amount of the PD...
The wound care nurse was working on Dianna and rolled her on the PD Catheter.
When I returned from lunch, Dianna's nurse said that she was retaining fluid.
But-- when I looked at her catheter bandage-- it was wet and the pad under her was totally wet.
The nurse did not realize that the fluid was leaking from Dianna's incision around the catheter.
The wound care nurse had caused the incision around the catheter to tear.
Now Dianna must stop the PD.
Hopefully the PD will work after her incision around the catheter heals AGAIN.
The doctor said she should wait a week or two before she tries PD.
THURSDAY:
Dianna had to begin regular dialysis today...
She did fine except for her blood did not clot well when finished and Dianna had some bleeding till she was given medication to help her blood clot.
FRIDAY:
Today was fairly quiet...
Dianna was able to get a little rest today.
TUESDAY:
Dianna had PD only and it worked fine at a low concentration.
WEDNESDAY:
The doctor increased the concentration and fluid amount of the PD...
The wound care nurse was working on Dianna and rolled her on the PD Catheter.
When I returned from lunch, Dianna's nurse said that she was retaining fluid.
But-- when I looked at her catheter bandage-- it was wet and the pad under her was totally wet.
The nurse did not realize that the fluid was leaking from Dianna's incision around the catheter.
The wound care nurse had caused the incision around the catheter to tear.
Now Dianna must stop the PD.
Hopefully the PD will work after her incision around the catheter heals AGAIN.
The doctor said she should wait a week or two before she tries PD.
THURSDAY:
Dianna had to begin regular dialysis today...
She did fine except for her blood did not clot well when finished and Dianna had some bleeding till she was given medication to help her blood clot.
FRIDAY:
Today was fairly quiet...
Dianna was able to get a little rest today.
Saturday, April 25, 2009
Day + 206
The swelling is gone, but now Dianna's skin looks like a snake skin that is about to shed.
The PD did not work last night-- the doctors believe that she got too dry being on both dialysis.
BUT they have started the PD again to night...
PLEASE PRAY that it will work for Dianna!
Dianna's school dedicated their Locks of Love to Dianna this year--
Lakeland Wedsite:
http://www.lisd.net/schools/lakeland/index.htm
Locks of Love Pictures/Video:
http://www.lisd.net/schools/lakeland/Index%20pictures/LocksofLove_1.wmv
The PD did not work last night-- the doctors believe that she got too dry being on both dialysis.
BUT they have started the PD again to night...
PLEASE PRAY that it will work for Dianna!
Dianna's school dedicated their Locks of Love to Dianna this year--
Lakeland Elementary's Locks of Love-- Dedicated to Dianna...
Lakeland Wedsite:
http://www.lisd.net/schools/lakeland/index.htm
Locks of Love Pictures/Video:
http://www.lisd.net/schools/lakeland/Index%20pictures/LocksofLove_1.wmv
Wednesday, April 22, 2009
Day + 203
Sorry for not updating since last Wednesday...
Dianna took a turn for the worse this weekend!
Saturday, April 18th-
Dianna's incision for the PD catheter began to leak fluid and was not pulling off all the fluid that was going into her abdomen; so the doctors decided to take her back into surgery to check for scar tissue and add more stitches around the catheter. Dianna had a hard time waking up so she was int abated and moved to PICU.
She began to breath on her own quickly, but they wanted to keep her over night.
Sunday, April 19th-
Dianna's incision for the PD Catheter began to leak again and she began to get an infection around the incision site.
Dianna had so much fluid in her body, that she looked like she could pop.
Also, Dianna's blood pressure dropped very low.
At this time the doctors came in to talk to us about our last options...
The doctors told us that she might not make it through the night!
We called in Dianna's family (thinking it might be to see her for the last time).
Monday, April 20th-
Dianna was taken into surgery again...
Thankfully the infection in her abdomen had began to clear so the doctor had more options on where to place the central line- it was placed in her right thigh and she was int abated again.
She was taken back to the PICU and began Dialysis.
The doctors are keeping her sedated while she was on so many machines.
Tuesday, April 21st-
Dianna was beginning to look better, she was not as swollen.
She was placed on a special air bed that keeps moving her body to help reduce sores on her back.
Wednesday, April 22nd-
Dianna was looking more like herself.
The doctors are beginning to reduce medications.
If she continues to do well...
the doctors may try the PD Dialysis again on Thursday or Friday.
Once she switches back to PD Dialysis; they will begin to wake Dianna.
PRAY that Dianna will continue to do better.
Dianna took a turn for the worse this weekend!
Saturday, April 18th-
Dianna's incision for the PD catheter began to leak fluid and was not pulling off all the fluid that was going into her abdomen; so the doctors decided to take her back into surgery to check for scar tissue and add more stitches around the catheter. Dianna had a hard time waking up so she was int abated and moved to PICU.
She began to breath on her own quickly, but they wanted to keep her over night.
Sunday, April 19th-
Dianna's incision for the PD Catheter began to leak again and she began to get an infection around the incision site.
Dianna had so much fluid in her body, that she looked like she could pop.
Also, Dianna's blood pressure dropped very low.
At this time the doctors came in to talk to us about our last options...
The doctors told us that she might not make it through the night!
We called in Dianna's family (thinking it might be to see her for the last time).
Monday, April 20th-
Dianna was taken into surgery again...
Thankfully the infection in her abdomen had began to clear so the doctor had more options on where to place the central line- it was placed in her right thigh and she was int abated again.
She was taken back to the PICU and began Dialysis.
The doctors are keeping her sedated while she was on so many machines.
Tuesday, April 21st-
Dianna was beginning to look better, she was not as swollen.
She was placed on a special air bed that keeps moving her body to help reduce sores on her back.
Wednesday, April 22nd-
Dianna was looking more like herself.
The doctors are beginning to reduce medications.
If she continues to do well...
the doctors may try the PD Dialysis again on Thursday or Friday.
Once she switches back to PD Dialysis; they will begin to wake Dianna.
PRAY that Dianna will continue to do better.
Wednesday, April 15, 2009
Day + 196
TUESDAY, April 14th:
Dianna had a doctor's appointment at 8:30am to check and see if she needed platelets before her surgery.
(Yes- she needed a platelet transfusion.)
Dianna's surgery began around 3:00pm.
It took several hours, but the surgeon said it went well.
Dr. Hermon inserted a catheter in her abdomen to begin the Peritoneal Dialysis;
and he inserted a new Port in her chest.
Later that night after Dianna was returned to her room, she began the dialysis.
Dianna woke up several times during the night hurting--
the nurse gave her pain medication and she was able to sleep.
WEDNESDAY, April 15th:
Dianna seemed to handle the dialysis well last night.
She slept most of the day today.
She was very sore due to having several incisions in her chest and stomach.
**PLEASE PRAY that Dianna is feeling better SOON.
Dianna had a doctor's appointment at 8:30am to check and see if she needed platelets before her surgery.
(Yes- she needed a platelet transfusion.)
Dianna's surgery began around 3:00pm.
It took several hours, but the surgeon said it went well.
Dr. Hermon inserted a catheter in her abdomen to begin the Peritoneal Dialysis;
and he inserted a new Port in her chest.
Later that night after Dianna was returned to her room, she began the dialysis.
Dianna woke up several times during the night hurting--
the nurse gave her pain medication and she was able to sleep.
WEDNESDAY, April 15th:
Dianna seemed to handle the dialysis well last night.
She slept most of the day today.
She was very sore due to having several incisions in her chest and stomach.
**PLEASE PRAY that Dianna is feeling better SOON.
Friday, April 10, 2009
Day + 191
Thursday, March 26th:
Today Dianna got to go HOME again...
This was a great Birthday present for me (Mom)! :-)
Saturday, March 28th:
Dianna began to spit up blood.
It lasted for about an hour, so I called her doctor and he wanted her to go to the hospital for platelets.
Also, Dianna's left arm had began to swell due to the new line they had inserted in her shoulder.
Thursday, April 2nd:
Dianna was able to return home again.
But before she left the surgeon removed the line causing her her to swell.
Now, Dianna does not have any access for blood draws or transfusions.
The doctors want to give her body a break from ports or central lines.
Wednesday, April 8th:
Dianna had a check up appointment...
Her platelets and red cells were very low, so Dr. Goldman wanted her to stay the night for transfusions.
During the process- Dianna's Kidney doctor wanted to run some tests on her kidneys because her Creatine has gone even higher. :-(
After several tests...
Friday, April 10th:
the doctors came in to talk with me about beginning Dianna on dialysis. :-(
The doctors recommend "Peritoneal Dialysis"...
this has a catheter inserted into Dianna's Peritoneal cavity and fluid is put into the abdominal cavity through the catheter.
At night during sleep, a machine called a cycler fills and empties (filters) Dianna's abdomen many times.
The doctor said there is still a small chance that her kidney could heal on its own,
but the chances are growing less as time goes on and we are not seeing improvements.
Dianna is HOME for the weekend!!! :-)
Dianna's doctor is to call me this weekend to setup the day for her surgery...
he is looking at Monday, April 13th or Tuesday, April 14th.
Dr. Goldman also wants a new Port inserted into Dianna during the surgery.
PLEASE PRAY that the surgery goes well, Dianna heals quickly and if possible (God willing) that her kidneys would begin to heal.
Today Dianna got to go HOME again...
This was a great Birthday present for me (Mom)! :-)
Saturday, March 28th:
Dianna began to spit up blood.
It lasted for about an hour, so I called her doctor and he wanted her to go to the hospital for platelets.
Also, Dianna's left arm had began to swell due to the new line they had inserted in her shoulder.
Thursday, April 2nd:
Dianna was able to return home again.
But before she left the surgeon removed the line causing her her to swell.
Now, Dianna does not have any access for blood draws or transfusions.
The doctors want to give her body a break from ports or central lines.
Wednesday, April 8th:
Dianna had a check up appointment...
Her platelets and red cells were very low, so Dr. Goldman wanted her to stay the night for transfusions.
During the process- Dianna's Kidney doctor wanted to run some tests on her kidneys because her Creatine has gone even higher. :-(
After several tests...
Friday, April 10th:
the doctors came in to talk with me about beginning Dianna on dialysis. :-(
The doctors recommend "Peritoneal Dialysis"...
this has a catheter inserted into Dianna's Peritoneal cavity and fluid is put into the abdominal cavity through the catheter.
At night during sleep, a machine called a cycler fills and empties (filters) Dianna's abdomen many times.
The doctor said there is still a small chance that her kidney could heal on its own,
but the chances are growing less as time goes on and we are not seeing improvements.
Dianna is HOME for the weekend!!! :-)
Dianna's doctor is to call me this weekend to setup the day for her surgery...
he is looking at Monday, April 13th or Tuesday, April 14th.
Dr. Goldman also wants a new Port inserted into Dianna during the surgery.
PLEASE PRAY that the surgery goes well, Dianna heals quickly and if possible (God willing) that her kidneys would begin to heal.
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