Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Thursday, September 3, 2009

Dianna's Funeral Arrangements

Visitation: Thursday September 3, 2009
6:30PM-8:30PM
First Baptist Church Lewisville TX
1251 W.Valley Ridge Blvd
Lewisville TX 75077

Funeral Service: Friday September 4th, 2009
10:00AM
First Baptist Church Lewisville TX
1251 W. Valley Ridge Blvd
Lewisville , TX 75077


Burial Service: Friday September 4th, 2009
3:00PM
Ryan Cemetery
Ryan Oklahoma 73565

Wednesday, September 2, 2009

Dianna's an Angel-- 9-01-09

Dear Friends of Dianna,

I have sad news to deliver. This morning Dianna passed away after a long courageous battle with Fanconi Anemia. I will send out visitation and funeral service information tomorrow (tentatively scheduled for Thursday night and Friday morning in Lewisville , TX ).

Nannette, Bret, and family have endured great hardship during the past year and many have asked how they can help. To support them during this time of need we are setting up the “Friends of Dianna” fund. This bank account will be used to assist the family with expenses during this difficult time. Should you like to contribute, you can send a check payable to “Friends of Dianna”. The contributions should be sent to either myself or Pat Kempf at the addresses below.

Dianna’s fight was epic. She has been, is, and will always be an inspiration to all of us.

Phil

Phil Hultquist
5712 Texas Trail
Colleyville, TX 76034
312-560-0418

Pat Kempf
c/o Moroch Partners
3625 N. Hall
11th Floor
Dallas, TX 75219

Sunday, August 30, 2009

Day + 333

Dianna had a good week, except for issues from withdraw...
The doctors are weaning Dianna off the pain/sedation medications,
but she is having withdraw from being on so much medication for so long. :-(
The doctors have given her methadone to help,
but she is still having shakes, fever, upset stomach (poor baby!)
It looks like Dianna is getting close to a removal of the ventilator tube.
(It may be not work, but I hope that the doctors will at least let her try to breathe on her own.)
Thanks again for ALL the prayers!!!

Sunday, August 23, 2009

Day + 326

Wednesday--
The "new" dialysis site (fistula) works great! :-)
Thursday--
Dianna did have an infection in the "old" dialysis line.
(That IS what was causing the fever.) :-(
Friday--
Dianna had dialysis in the morning, then...
Another SURGERY to insert a "pick line" into her right arm.
After she was back into her room and the nurses made sure the pick line worked...
they removed the old dialysis line and the art line.
Due to the infection the doctors had to increase the rates on Dianna's ventilator. :-(
(Yes-- Dianna is still on the ventilator.)
This weekend they're working on weaning her back down to a lower setting.
Please pray for no more infections and getting off the ventilator.
Thank you for ALL the prayers!!!

Wednesday, August 19, 2009

Day + 322

Tuesday:
The doctors took Dianna off the CVVH (dialysis machine)...
they want to try her new graft on the "regular" dialysis machine on Wednesday.
If the new graft works...
they will take out the old "temporary line" which is good
(one less area for infections).
ALSO--
Dianna is NOW on such a low setting on the ventilator...
the doctors are going to try to take her off the vent in the next day or two! :-)
Dianna did have a little fever today...
please pray that she does not have an infection.

Sunday, August 16, 2009

Day + 319

Dianna is the "Come Back Kid"- AGAIN! :-)
She is amazing the doctors again...
This morning the nurse was able to turn OFF the last of the blood pressure medications!
She had been on three different medications at one time just to keep her pressures up.
The ICU doctor said-- "I wish that I could say it was something that I did."
**But we know that it was something God did!**
(and maybe a little of Dianna's stubbornness-- "I'll show you!") :-)
She is still off the oscillator, but not off the ventilator.
THANK YOU for all the prayers!!!!!
Please keep praying that Dianna continues to improve and that she does NOT get an infection.
(Dianna's body is so weak at this time, but she is still fighting.)

Thursday, August 13, 2009

Day + 316

Today was NOT a good day...
We had a "Care Conference" with Dianna's doctors-
to see if all the doctors are on the same page with Dianna's care.
The three doctors that were in the room all said that they felt that there is nothing more they know to do to help Dianna.
She is not getting any better-
her blood pressure is unstable even with high doses of blood pressure medications
and they have not been able to take off enough fluid with the dialysis machine.
Each day she ends up being positive fluid for the day.
The doctors feel that her veins may be leaking fluid into her body tissue. ???
She does not have an infection, but she is not getting better.
Her hematologist said that the bone marrow transplant was successful,
but that she still needs transfusions due to being so sick from the kidney failure.
I think that Dianna is getting tired of hurting and fighting.
Her body is very weak, but she is still fighting.
*I do not want her to suffer!*
*God, please take care of my baby!*