Dianna's Journey w/ Fanconi Anemia: Ready to go HOME

Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.

Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:
126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Showing posts with label Ready to go HOME. Show all posts

Wednesday, February 11, 2009

Day + 133 (Total days in hospital= 142)

Dianna gets to go HOME- Thursday!
(Unless something unusual comes up tonight)
*I have been afraid to post this again after the last time and she did not get to go home.
Dianna will still need IV fluids, blood pressure checks, etc at HOME- so Mom has been learning to do all this (we will have a home health care helping/checking me the first week or so)
ALSO- Dianna will have to return to the doctor's office 3 times a week.
If her kidneys get better, then this will be reduced.
BUT- if her kidneys do not get better, Dianna will have to go back into the hospital for another treatment (that will require having another Central Line inserted)
PRAY-- that Dianna's kidneys continue to heal AND that she will not have any more complications due to her Bone Marrow Transplant!