Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, July 2, 2007

July 2007


Sunday, July 22, 2007 10:40 PM CDT

Update from our trip to Cincinnati...

The entire family went to Cincinnati on this trip (Dianna, Daddy Bret, Mom, Ryan, Nicolaus, Courtney and Kaelynn).
It was some good family time, but a lot of driving.

We left Saturday, July 7th from Granny and PawPaw's house in Ryan, OK. and drove to Springfield, MO. While in Springfield, we attended a Minor League Baseball Game.

Sunday, July 8th we drove to St. Louis, MO. There we went up in the Arch and looked around the museum in the bottom.

Monday, July 9th we drove to Cincinnati, OH.
We made several stops along the way.

Tuesday, July 10th we drove to Dayton, OH and went to see where the Wright Brothers have a museum and the Air Force Museum.

Wednesday, July 11th Dianna had three different appointments. (one right after the other)

**The doctor suggested that we tour the transplant center on our next visit in three months! :-( **
(Please keep Dianna in your prayers!)

After Dianna's appointments we went to the Cincinnati Zoo, then we drove to Kentucky to visit the Newport Aquarium.

Thursday, July 12th we drove to Nashville, TN. We had dinner with Bret's cousin.

Friday, July 13th we drove to Memphis, TN and took the tour of Graceland. (Mom's favorite part!)
Next, we drove to Little Rock, AR and the kids swam and had pizza at the hotel pool.

Saturday, July 14th we drove back to Ryan, OK to pickup the puppies.

Sunday, July 15th we drove HOME!

Monday, July 16th- July 20th: Dianna attended Vacation Bible School and Nicolaus was a Class Helper for VBS.


Dianna's Labs (July 11, 2007):
white blood count: 5.9, red blood count: 3.32, HGB: 11.7, platelets: 36, neutrophil absolute: 1.71


Tuesday, July 3, 2007 8:40 AM CDT

Last week was very busy...
Dianna, Courtney and Kaelynn attended "Kidz Praize Dayz" at our church.
It is a week of learning songs in the mornings, then the afternoons doing fun activities (like swimming, skating, putt putt and Chuck E Cheese).
Then on Friday night the kids put on their show!
Nicolaus and Ryan were Music Police (Leaders) this year.
The 7th thru 12th grades help lead the 1st thru 6th grades.
They had a great week! :-)

Today, we are getting ready to leave for Cincinnati Children's.
Dianna has a check up next week.
We plan on going to Ryan, OK for a couple of days then start the long drive on Saturday AM.
Pray for a safe trip and that Dianna has a good report.
Thanks,
Nanette

Tuesday, June 19, 2007

June 2007

Monday, June 18, 2007 3:37 PM CDT

On Friday afternoon, June 15th- We watched Dianna's cousin Madison win a Cheerleading Medal at her Cheer Camp.
(Yea Madison!)
Then Friday night we (Dianna, Mom, Daddy Bret, Ryan, Nicolaus, Courtney and Kaelynn) drove to Ryan, OK.
Saturday, June 16th- The family and Pawpaw drove to the farm house to work.
Sunday, June 17th- Happy Father's Day!
Monday, June 18th- Dianna stays at Camp PawPaw and Granny.
And- Nicolaus, Ryan, Courtney and Kaelynn leave for church camp at Falls Creek in Davis, OK.

Tuesday, May 15, 2007

May 2007

Mondayday, May 14, 2007 8:35 PM CDT

Saturday night we- (Dianna, Nicolaus, Mom and Daddy Bret) attended the Make A Wish "Wish Night".
It is a big fundraiser for Make A Wish.
It included an auction, raffles, dinner and dancing.
Dianna sold Wish Bears that included a raffle ticket for jewlery from Zales.
It was a wonderful evening!

Labs...

4/27/07:
white blood counts-3.9, red blood counts-2.40, hgb-8.4, platelets-40, neutrophil absolute-1.3

Wednesday, April 18, 2007

April 2007


Tuesday, April 17, 2007 9:58 AM CDT

Dianna and I returned from Cincinnati Children's on Saturday.
It was a long four days and we are glad to be home.
Dianna did great with her bone marrow biospy (she was very brave!)
Now we must think about the next step for Dianna.

Labs...

4/13/07:
white blood counts-4.2, red blood counts-2.84, hgb-10.1, platelets-38, neutrophil absolute- .80


Monday, April 2, 2007 8:56 AM CDT

Dianna lost a front tooth last night (Sunday). :-)
She was very excited!
The Tooth Fairy brought her a Gold Dollar.

Saturday, we went to see Nana in Henderson, TX. for her birthday. (Happy Birthday Nana!)
The flowers were BEAUTIFUL on the drive to east Texas.

Dianna and Mom go back to Cincinnati Children's on April 11th and return April 14th.

Labs...

3/14/07:
white blood counts-4.8, red blood counts-2.57, hgb-9.0, platelets-34, neutrophils-27

3/22/07:
white blood counts-4.8, red blood counts-2.54, hgb-9.3, platelets-40, neutrophils-32

Friday, March 2, 2007

March 2007

Wednesday, March 14, 2007 11:05 AM CDT

On March 3rd, we had Dianna's Skate Birthday Party.
Dianna had several friends attend from school and church. Also she had her mom, daddy Bret, two brothers- Nicolaus & Ryan and two sisters- Courtney & Kaelynn, Pawpaw, Granny, Aunt Mickie, cousins- Derek and Madison, and family friends- John and Tammy. :-)

Dianna had a GREAT time!

On March 12th (Actual Birthday)- Dianna, Mom and Nicoalus went out to eat at TJ Hartford's.
Dianna loves to eat here because of the games and ice cream.

Labs...

2/08/07:
white blood counts-3.9, red blood counts-3.06, hgb-10.9, platelets-49, neutrophilis-1.4

2/14/07:
white blood counts-5.9, red blood counts-2.99, hgb-10.8, platelets-44, neutrophilis-1.8

3/07/07:
white blood counts-4.3, red blood counts-2.63, hgb-9.3, platelets-38, neutrophilis-1.0

Tuesday, January 2, 2007

January 2007

Monday, January 29, 2007 9:16 PM CST

On January 9th, Dianna rode in the "Chisholm Challenge For Special Riders" at the Fort Worth Stock Show & Rodeo.
In the English Equitation for Dianna's level she received 5th place.
In the Trail Course for Dianna's level she received 2nd place.
We are very proud of her!!!
Dianna had a large cheering section: Mom, Daddy Bret, Nicolaus, Granny, Pawpaw, Nana, Aunt Mickie, Cousin Derek, Cousin Madison and a dear friend John.
It was a long day, but very rewarding to watch.

On January 17th, Dianna, Mom and Tammy went to Cincinnati.
We almost did not get out of Dallas due to ice and snow.
The plane was delayed, but did leave.
We had a check up appointment on the 18th, then we went to see the Aquarium and out to dinner.
On Friday, the 19th Dianna had a bone marrow biopsy that morning.
Then late morning an appointment with Dr. Rose to check on her endocrine levels.
Next, back to the hotel for a long nap!
Finally, Saturday we had a late check out, so we slept in then back to the airport to return home. :-)

Labs from past two weeks...

1/19/07:
white blood counts-4.5, red blood counts-3.13, hgb-10.7, platelets-40

1/24/07:
white blood counts-4.7, red blood counts-3.12, hgb-11.1, platelets-53


Monday, January 8, 2007 10:35 AM CST

Happy New Year!

Dianna is getting ready to ride in the "Chisholm Challenge For Special Riders" (competitive horse show) at the Fort Worth Stock Show & Rodeo on January 9th.
Her events are English Equitation and Trail Course.

I will update with pictures soon. :-)

NEXT WEEK (Jan.17-20)- Dianna, Tammy (Mom's Best Friend) and Mom return to Cincinnati Children's Hospital to see doctors and for testing.
I will update on this too.

LABS from past two weeks...

12/27/06:
white blood counts-5.7, red blood counts-3.37, hgb-11.4, platelets-49

1/03/07:
white blood counts-4.9, red blood counts-3.33, hgb-11.6, platelets-57