Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, December 12, 2005

December 2005


Monday, December 19, 2005 8:58 PM CST

Another busy weekend...
Friday, Nicolaus had a birthday party and Ryan, Courtney and Kaelynn arrived.
Also, Nic's friend Cody spent the night.
Saturday, we got up early. Dropped off Cody and drove to Sherman, TX. to see my Uncle Dickie in the hospital. (He had four by-passes done on Friday) It was good to see him, but I know it will be awhile before he feels like himself again.
(He is in our thougths & prayers!)
Next, we drive back so Courtney can go to her basketball game & Dianna can attend her friends birthday skate party.
Sunday, up early again for church.
Ryan's church choir group was singing during church in the morning service and preforming again that evening. Following our Bible Study, Nicolaus' grade was having their Christmas Party. They had lunch then went caroling at a Retirement Center and finally went to a movie.
We also went to visit Doris at the Nursing Home and give her a Christmas present.
Bill (her husband) was there & we gave him his Christmas gift also.
It was 8:30 PM before we finally arrived home & still had to feed & get kids ready for bed.
I was READY for bed!


Wednesday, December 14, 2005 10:33 AM CST

Sorry it has been a while from the last entry!
We have been very busy at our house.

To begin with we had 22 people at our house for Thankgiving Lunch. It was a lot of fun.

Next we were getting Christmas decoration up and shopping for Christmas gifts.

Dec. 3rd was the Old Town Christmas Stroll in Lewisville. It has many activites for the kids. And a Christmas parade.

Nicolaus, Courtney and Kaelynn sang at church on Dec. 4th.
(Dianna was to sing also, but had a bug that day and had to stay home with Mom.)

Dec. 13th, Nicolaus had his Orchestra Winter Concert. So Granny & PawPaw came down from Oklahoma to watch.
Before the concert- They picked Dianna up from school and went to see Santa. Dianna told Santa what she wanted for Christmas and had her picture made. (It turned out very good)
Finally we went to see Nicolaus play his violin. He did great! We are very proud of him.

Wednesday, October 12, 2005

October 2005

Tuesday, October 11, 2005 11:13 AM CDT

Yesterday- Dianna, Nicolaus and Mom went to the Texas State Fair.
There was a lot of traffic trying to get to the fair.
It took us over two hours, normally would have been about 30 to 45 minutes.
We had a great time anyway.
Nicolaus & Mom did a lot of walking (Dianna got to ride in her stroller).
We rode the giant Texas farris wheel and Nicolaus & Dianna went through a few fun houses.
Most importantly we ate a lot of junk! :-)
It was a fun trip!!
Dianna & Nicolaus were so wound up from junk food and excitement- it took quite a while to go to sleep.

We will be going to sleep early tonight!


Wednesday, October 5, 2005 8:25 AM CDT

Last night we attended the University of North Texas football game.
We were invited to attend with a group from Texas Scottish Rite Hospital.
The school had a barbeque dinner for us before the game.
Then we got to sit on the front row of the 45 yard line. Great seats!
And we had a wonderful time!!

Friday, August 12, 2005

August 2005

Monday, August 22, 2005 10:15 PM CDT

Today Dianna had an appointment with her Hematologist.
Her platlet counts had dropped from 90 to 79.
The doctor said to watch her for brusing and/or bleeding that did not stop quickly.
He also said for her to be careful on the playground at school. (Easier said than done! Dianna is not afraid to try anything.)


Sunday, August 07, 2005 10:30 PM CDT

We are trying to get ready for school & our trip to Camp Sunshine.
School starts on Thursday, Aug. 11th. Then we leave for Camp Sunshine that afternoon. So Dianna will go to school the first day, but miss the second and third days of school.
(I do not think she minds!) Dianna is very excited about starting school & getting to go back to Camp.
She had a wonderful time last year.

I have added new pictures from our "Make-A-Wish" Trip to Flordia.
**See photos**


Saturday, August 06, 2005 10:27 AM CDT

Today is Dianna's brother- Nicolaus' birthday!
We will do some shopping for school clothes today.
Then tonight we are going to the Magic Time Machine to eat.

Tuesday, July 12, 2005

July 2005

Friday, July 15, 2005 8:47 AM CDT

Tomorrow we leave for Dianna's "Make-a-Wish" Trip!
She is so excited! I do not think she will be able to sleep tonight. We leave at 10:30 AM on Saturday morning.
We return on Friday at 7:30 PM.

I will update next week with pictures! :-)


Tuesday, July 05, 2005 8:30 AM CDT

Dianna, Nicolaus, Daddy Bret, Mom, Tammy, John & Mikayla went to Galveston for the July 4th weekend.
We had a great time at the beach. We played in the waves and sand. Also enjoyed eating alot of shrimp.
Monday, we decieded to go to Houston NASA. It was very interesting. We arrived home Monday night just in time to watch the fireworks show at the mall in Lewisville.

Sunday, June 12, 2005

June 2005

Monday, June 27, 2005 8:36 AM CDT

We went to the lake for the weekend. It was PawPaw John's birthday on Sunday. So PawPaw John, Nana, MeMaw, Uncle Doug, Aunt T., Uncle Mark, Katie and our family all meet at Uncle Mark's lake house. We had a great time. The kids and Uncle Doug slept outside in tents on Friday night, but Saturday night everyone slept inside. It was very hot! The kids went swimming, tubing and sking.
Dianna tried to water ski for the first time! She made it up about half way then lost her ski. The only problem was she did not let go of the ski rope, so the boat was pulling her with her face in the water. She came up saying "See I told you I should have used ONE ski!"
(Uncle Doug had used one ski just before her, so she thought she should do the same.)
Dianna is NOT afraid of anything!


Friday, June 10, 2005 4:41 PM CDT

Last night we attended a Frisco Rough Rider Game. (semi pro baseball team) It was hot, but fun. They had many things for the kids. Dianna enjoyed this better than the Texas Rangers Games.
Granny & Pawpaw are coming to visit tonight. They are staying the weekend. Pawpaw is helping Daddy Bret and Nicolaus pour concret around the back patio.

Thursday, May 12, 2005

May 2005

Sunday, May 22, 2005 8:59 PM CDT

Today was awsome!
The entire family attended the Corvette Classic at the Texas Motor Speedway. Make-a-wish invited us to ride in the Corvettes and also in a helicopter. The Corvette Drivers loved Dianna. When she was in the cars she would say faster, faster (they were already going between 95 to 120 miles per hour.) Also she would ask them to turn up the radio- louder, louder. They thought is very so cute coming from such a small little girl. She was NOT afraid! The kids got to ride in 4 or 5 different Corvettes. Each time they got to go around the track several times. It was very thrilling! Also Dianna loved the helicopter ride. No one in our family had ridden in a helicopter, so this was exicting for everyone. It was beautiful flying over and around the Texas Motor Speedway. Finally, to end the day. We went to Lake Lewisville to swim and cool off after another day of 99 degrees. (They said on the track it is even hotter!) While the kids swam, Bret cooked hotdogs on the grill.
What a GREAT day!


Saturday, May 21, 2005 10:55 PM CDT

Today was so hot! 99 degrees outside & we spent most of the day outside. Dianna's brothers- Nicolaus & Ryan each had a baseball game. It was fun, but very hot.


Wednesday, May 18, 2005 10:40 AM CDT

Yesterday was another busy day! First school, then run to eat an early dinner. Next, Dianna to horse back riding lessons. Dianna's horses name is "Snowflake". You can see a picture of her if you go to the link below- "Spirithorse". Dianna loves riding and has become very good. She is also learning a lot about horses.
Finally, after horse back riding we run to brother- Nicolaus' baseball game. It was a good game, but they lost by one point.
We still had fun.


Sunday, May 15, 2005 10:31 AM CDT

Today we attended the Byron Nelson Golf Tournament. Daddy Bret & Nicolaus walked part of the course, but Mom & Dianna sat most of the time at hole #17. We saw Vejay (sp?) make a hole in one. After the Tournament we went to Chuck E Cheese's. Dianna's FAVORITE place to eat. Finally home to finish brother Nicolaus' Science Fair Project. (not fun) Everyone was very tired after all the walking today!

Sunday, April 24, 2005

April 2005 Posts

Wednesday, April 27, 2005 9:56 AM CDT

Last night we went to an awards ceremony honoring Dianna & some other child in the school district. The invite stated:
The Lewisville Independent School District is proud to recognize your child for his/her school performance during 2004-2005. Your child has been selected to receive this honor based on "Positive attitude, perserverance, effort, courtest to peers and teachers, following school rules, and use of time".
Dianna received a trophy for this award. She was so excited!
We also attended a LHS Varsity Baseball Game last night. Dianna's brother, Nicolaus got to throw out the first pitch. He was chosen by his principle to represent the school. Nicolaus was excited too! Granny & Pawpaw came down from Oklahoma to see both activities. We are very proud of both Dianna & Nicolaus! :-)


Saturday, April 23, 2005 9:44 AM CDT

Dianna & Nicolaus attended their cousin Derek's swim birthday party today. After the party we went to eat pizza & cake. They had a GREAT time, but very tired. Dianna & Nicolaus did not want to go home. They love to visit their cousins- Derek & Madison!