Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, February 11, 2009

Day + 133 (Total days in hospital= 142)

Dianna gets to go HOME- Thursday!
(Unless something unusual comes up tonight)
*I have been afraid to post this again after the last time and she did not get to go home.
Dianna will still need IV fluids, blood pressure checks, etc at HOME- so Mom has been learning to do all this (we will have a home health care helping/checking me the first week or so)
ALSO- Dianna will have to return to the doctor's office 3 times a week.
If her kidneys get better, then this will be reduced.
BUT- if her kidneys do not get better, Dianna will have to go back into the hospital for another treatment (that will require having another Central Line inserted)
PRAY-- that Dianna's kidneys continue to heal AND that she will not have any more complications due to her Bone Marrow Transplant!

4 comments:

Unknown said...

I am so happy for you guys! I think that the power of prayer and Dianna's strong will, all will be ok. As well as your strong will too mom! Please keep us posted on how everything is going at home. You guys have come such a long way, and please tell Dianna how proud she should be of herself.
Love to you and your family,
Sarah

Kelly said...

I am happy to read this today. I will be saying lots of prayers and can't wait to read an update from home!!!!

Charisse said...

That is awesome that Dianna gets to come home. We are most certainly still praying for her kidneys to heal completely.
Love Charisse

Unknown said...

This is great! I hope everything goes smoothly. Best wishes to Dianna and your family!

Ning
Amy Wang's mom