Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Showing posts with label Teresa and Emma ALSO Ms. Dent. Show all posts
Showing posts with label Teresa and Emma ALSO Ms. Dent. Show all posts

Saturday, November 22, 2008

Day + 52 (Total # of days in hospital= 61)

Thursday: Teresa & Emma (FA) Clifton stopped by for a visit.

Thursday: Ms. Dent, Ms. Tierney & Ms. R (Dianna's Teachers) stopped by for a visit. :-)
Blood work for 11/20/08-
white blood cells: 3.7, red blood cells: 4.04, HGB: 12.7, platelets: 55, ABS neut: 3.108
THURSDAY:
Dianna had a good day, but her blood pressure was high all day.
Then- about 7:45pm Dianna's blood pressure went so high that she began to have a seizure. :-(
She had another as they were getting ready to transfer her to PICU. :-(
They rushed her in because she began having problems breathing! :-(
Dianna was put on a breathing machine for about an hour till her breathing was back to normal.
FRIDAY & SATURDAY:
The doctors are trying to find the best combination of blood pressure medication for Dianna.
The other medications that she is on are causing the high blood pressure.
(steroids, cyclosporine, probenecid & cidifovir)
Dianna is NOT happy with being in the PICU.
She keeps crying-- "Mommy, I want to go home!" :-(