Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Saturday, November 22, 2008

Day + 52 (Total # of days in hospital= 61)

Thursday: Teresa & Emma (FA) Clifton stopped by for a visit.

Thursday: Ms. Dent, Ms. Tierney & Ms. R (Dianna's Teachers) stopped by for a visit. :-)
Blood work for 11/20/08-
white blood cells: 3.7, red blood cells: 4.04, HGB: 12.7, platelets: 55, ABS neut: 3.108
THURSDAY:
Dianna had a good day, but her blood pressure was high all day.
Then- about 7:45pm Dianna's blood pressure went so high that she began to have a seizure. :-(
She had another as they were getting ready to transfer her to PICU. :-(
They rushed her in because she began having problems breathing! :-(
Dianna was put on a breathing machine for about an hour till her breathing was back to normal.
FRIDAY & SATURDAY:
The doctors are trying to find the best combination of blood pressure medication for Dianna.
The other medications that she is on are causing the high blood pressure.
(steroids, cyclosporine, probenecid & cidifovir)
Dianna is NOT happy with being in the PICU.
She keeps crying-- "Mommy, I want to go home!" :-(

5 comments:

Charisse said...

Hi Nanette,
what a crazy day! Pretty full on. I am sorry that Dianna is asking to go home and is upset. I hope you are holding up ok. Praying for you guys.
Love Charisse

Donetta said...

Loved seeing your pictures with Mom, friends and your teachers.. what a beautiful smile. You have had a few more tough days, I don't blame you a bit for being tired of all that and wanting to go home. It is just that all the wonderful doctors and nurses are there and they are close by when you need them. I know some days are harder than others. Hang in there. You are loved. Love Donetta

Unknown said...

Dianna,
What a wonderfully brave and beautiful young lady you are! I hope that you are feeling better today, and each day that goes by you will grow stronger just knowing that you will go home feeling so much better. Your smile makes me smile! In all of the pictures that you are smiling, it looks like you light up the whole room. I really liked the picture of your halloween costume, that was really cool. Hugs to you and your whole family and keep up the good work. I will be reading your mom's posts every day to see how you are doing.
Keep smiling, you probably light up the whole hospital! Who needs electricity anyways!
Sarah
Sarah

Teresa said...

I'm sorry I didn't see this earlier! It wasn't until I saw your email on the FA group and saw everyone's comments that I began wondering what was going on.

How scary! I hope they figure out the correct balance for her and do it quickly. Breaks my heart with her wanting to go home so badly. I can't imagine your stress/emotions through it all. Hang in there guys. Our hearts and prayers and with you. I'm amazed by your strength!

Love/God Bless,
Teresa & Emma

Maggie said...

Thinking and praying for you everyday Dianna! And always thinking of your infamous giggle! Hope everyone is holding up ok, Dianna you look beautiful!
Love
Maggie from Camp Sunshine!:0)