Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Friday, April 10, 2009

Day + 191

Thursday, March 26th:
Today Dianna got to go HOME again...
This was a great Birthday present for me (Mom)! :-)
Saturday, March 28th:
Dianna began to spit up blood.
It lasted for about an hour, so I called her doctor and he wanted her to go to the hospital for platelets.
Also, Dianna's left arm had began to swell due to the new line they had inserted in her shoulder.
Thursday, April 2nd:
Dianna was able to return home again.
But before she left the surgeon removed the line causing her her to swell.
Now, Dianna does not have any access for blood draws or transfusions.
The doctors want to give her body a break from ports or central lines.
Wednesday, April 8th:
Dianna had a check up appointment...
Her platelets and red cells were very low, so Dr. Goldman wanted her to stay the night for transfusions.
During the process- Dianna's Kidney doctor wanted to run some tests on her kidneys because her Creatine has gone even higher. :-(
After several tests...
Friday, April 10th:
the doctors came in to talk with me about beginning Dianna on dialysis. :-(
The doctors recommend "Peritoneal Dialysis"...
this has a catheter inserted into Dianna's Peritoneal cavity and fluid is put into the abdominal cavity through the catheter.
At night during sleep, a machine called a cycler fills and empties (filters) Dianna's abdomen many times.
The doctor said there is still a small chance that her kidney could heal on its own,
but the chances are growing less as time goes on and we are not seeing improvements.
Dianna is HOME for the weekend!!! :-)
Dianna's doctor is to call me this weekend to setup the day for her surgery...
he is looking at Monday, April 13th or Tuesday, April 14th.
Dr. Goldman also wants a new Port inserted into Dianna during the surgery.
PLEASE PRAY that the surgery goes well, Dianna heals quickly and if possible (God willing) that her kidneys would begin to heal.

5 comments:

Anonymous said...

Praying for this long journey to ease up! Lots of hugs.
Krisstina, Keith, Jo ( 19 yrs FA-A), Jacy (17yrs FA-A), and Cameron
www.caringbridge.org/ks/jojacybox

Charisse said...

Hi Nanette and Dianna,
I am so glad you are home for the Easter weekend.
Nanette, Happy birthday for the other day!
I am sorry about having to begin Dialysis for Dianna. It is possible, my love, for God to heal her kidneys. The dialysis will give her kidneys a rest and enable them to heal as well. I will be praying about the kidney issue mu love.
May you enjoy your Easter no matter the circumstances.
Lots of love,
Charisse

Teresa said...

That is not something you want to hear... My heart and prayers go out to you guys. We hope and pray that this will be a special Easter for you and that the Lord will bless you and carry you through all of this...and most importantly that Dianna's kidneys will heal!

Hugs/Love,
Teresa & Emma

Anonymous said...

Hi,

I'm in the FA newsletter and I've been reading your blogs. I wish you the very best. I am also an FA (18 years old, female) and I have been through a bone marrow transplant about 3-4 years ago so I know how you feel Dianna! Don't give up as I had almost died two times. Keep believing and stay optimistic. Take all your medicine on time and drink A LOT! During my transplant, my creatinine was also very bad.

Dianna, you will become much wiser than most as you grow older because of everything you have been through. Because of my transplant, I am more open-minded and I learned to not take things for granted ever and to live each day one by one. I will keep you in my prayers and never give up! :) :) :)

Love,
Anna
(annanapup@hotmail.com)

Momma Bear said...

Happy Bee-lated bearthday! We'll be praying really hard for Dianna and our hearts are with you all.

Blessings and Bear Hugs