Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Thursday, July 2, 2009

Day + 274

Tuesday-
The nurses got Dianna into a reclining chair! :-)
(The only down side was that Dianna thought that she would be able to go for a ride out of her room-- but she can not with the ventilator still attached.)
Wednesday-
Dianna had a surgery to clean/switch out the old temporary dialysis line in her right thigh.
(She had an infection in the plastic line and the doctors were afraid that it would spread to her new dialysis line)
Thursday-
Dianna had surgery to insert the NEW Permanent Dialysis line in to her left thigh.
(The doctor said the surgery to insert the new line went well, but Dianna's skin is still so thin and fragile that it was very difficult to close-- The doctor said that he HOPED that her skin would not tear away from the stitches.)
PLEASE PRAY that Dianna's NEW Dialysis Line works, her skin heals and she does not get another infection.
THANK YOU!

3 comments:

Unknown said...

Hey Miss Dianna,
So sorry for all the surgeries in the past couple of days, but they sound like they were all successful, yeah!!! I am praying that all the stitches stay together and no more infections!!! I am also praying for rapid healing and that you will be able to take a ride outside of your room!!! Maybe one day in the near future you can take a ride on a pony instead of a chair!!! Wouldn't that be great, because I know personally and firsthand what an awesome rider you are!!!!!!! Go get-um cowgirl! Wishing you and all of your family a happy 4th of July. Miss you honey, and be sure to tell mom that I said hello. Sending lots of love your way!!!
God bless you sweetie!!! Miss Cynthia

Teresa said...

What an incredibly strong young lady you (and your mom) are!! You are going through so much not fun stuff, but you're doing it, and every day you're one step closer to being able to leave your room...and then to home.

You're in our prayers! We hope you heal quickly and that the stitching stays in well. Big, big, big HUGS!!!

Love,
Teresa & Emma

Charisse said...

Hi Nanette,
thanks for keeping us updated. Dianna is a very incredible lady! She has gone through so much and still plodding on. We are praying for you both. Praying for healing. Praying her skin gets stronger. Praying her kidneys will heal. Praying for strength!
Lots of love,
Charisse