Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, September 2, 2009

Dianna's an Angel-- 9-01-09

Dear Friends of Dianna,

I have sad news to deliver. This morning Dianna passed away after a long courageous battle with Fanconi Anemia. I will send out visitation and funeral service information tomorrow (tentatively scheduled for Thursday night and Friday morning in Lewisville , TX ).

Nannette, Bret, and family have endured great hardship during the past year and many have asked how they can help. To support them during this time of need we are setting up the “Friends of Dianna” fund. This bank account will be used to assist the family with expenses during this difficult time. Should you like to contribute, you can send a check payable to “Friends of Dianna”. The contributions should be sent to either myself or Pat Kempf at the addresses below.

Dianna’s fight was epic. She has been, is, and will always be an inspiration to all of us.

Phil

Phil Hultquist
5712 Texas Trail
Colleyville, TX 76034
312-560-0418

Pat Kempf
c/o Moroch Partners
3625 N. Hall
11th Floor
Dallas, TX 75219

14 comments:

Judy said...

My deepest sympathy to your family. I have been keeping up with Dianna's journey, and it breaks my heart to hear that she passed away. Know that I understand your pain, and that God is with you. Let him comfort you as only he can.
In Christian Love,
Judy Smith,
mom of Angel John Cooper Smith,
September 25,1995-April 15, 2007

Anonymous said...

I've read all of Dianna's trials through the BMT and sit here completely floored over the news of her passing. She was an amazingly strong little girl and my heart just breaks for your whole family. Remember the good times. I pray you find strength through this most difficult time.

John Hanna
37 FA

Charisse said...

Nanette and family,
I know I already posted but I wanted to write again. I am deeply sorry for your loss of Dianna....our loss. She had such a beautiful spirit about her. An amazing person still. Nanette, your mummy heart must be breaking. I am praying for you my love. We will be lifting you up in prayer and I know Jesus will comfort you, even though it may not feel that way at first.
I love you heaps and heaps. My heart is hurting....oh how I love you and are praying.
Love Charisse

JAMAMUM said...

Dear Nanette, I am so saddened to hear of the passing of your tough little baby. she is an inspiration to us all.
We are thinking of you in this time, and send you much love.
Paul, Brooke and Jasper

Mary Ann Fiaschetti said...

Dianna's smile shall live forever in the hearts of our FAmily. We were all heartbroken that she endured so much pain for so long but are relieved that she is in His loving arms and painfree. Please know we continue to pray for all of you and hope you find strength in the joy she brought to you.
Love and hugs.
the Fiaschetti FAmily

Unknown said...

Nanette,
I have kept up with Dianna's status from afar and am deeply saddened by hearing that she has lost her battle with FA. She was a strong little girl who made the world shine brighter with her presence. I can still picture her and Katie playing in our front yards and Dianna always having a smile. One thing that still stands out with me today is the day Dianna (at almost 5) and Katie (at almost 2) were walking hand in hand and Dianna realized Katie had thumbs. She was amazed by this fact, while you and I just stared at each other. I explained that some people had thumbs while others didn’t, like Mickey Mouse, and she that she was special. The expression on her face was priceless when she looked at us and said that she was special just like Mickey Mouse. She was indeed a very special girl and will be truly missed by all that knew her.
I know that the love and support of your family and friends will help you get through this difficult time. Please know that you have been and will continue to be in our thoughts and prayers.
With Love,
Kim, Steve & Katie Ayers

Unknown said...

Dear Nanette,
I just learned the news of Dianna's passing. I cannot begin to tell you how sorry I am for your loss. Dianna was and always will be one of the most precious little girls I have ever known. I can truly say she touched my life in so many special ways because she was so incredibly special herself. She had the most amazing spirit and strength for her young age. I will always remember her beautiful smile, her wonderful laugh and her zest for life! She was and always will be an inspiration to me for her strength and courage. I will miss her terribly. I know that Jesus has his arms wrapped around her as we speak,and that she is no longer suffering. I know that you are hurting terribly right now and that your heart is broken, but I also know that Jesus has his arms wrapped around you as well. He will lift you and carry you Nanette every step of the way. I know how strong your faith is and He will never leave you. Please know that you and your whole family are in my prayers. May you all find peace and comfort in knowing that God has all of you in His loving embrace.

Sending my deepest sympathy and all of my love,
Miss Cynthia

Unfair Justice said...
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Unfair Justice said...
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Karlysmom said...

Nanette, Bret & Family: My most sincere condolences on the passing of Dianna. I met y'all at camp and know what a wonderful family you are. My heart breaks for you all. Please know I'm thinking of you and keeping you close in prayer. Lean on the Lord and He'll give you the peace, strength and understanding for each day. Wish I could be there to give you a hug and cry with you. Hold tight to the knowledge you'll see her again in Heaven where she is now rejoicing with Jesus.
With Love,
Nancy Ross
(Les, Kyle & Karly too)

Wesley's Mom said...

I have been wanting to write, but my eyes fill with tears and it hurts to breathe. I don't even have the right words. I just want you to know that my heart aches for your family. I pray Dianna sends you signs to let you know she's okay and visits you in your dreams to remind you of all the beautiful times you've had together. No more hospital bed or tests or tubes or needles. Her body is surrounded by hugs, love and warmth now. I'm so very sorry.

-Kristin

Susan said...

I am so sorry about Diana. I have been following her blog. My thoughts and prayers are with you. Susan Dixon-Mom of angel Alex Williford he had complications after his BMT.
April 5,1989-March 22,2007

Meredith Stapleton said...

I am so sorry to hear about Diana. I missed her so much at Camp Sunshine this year. I'll never forget when she asked me "Why do people get married?" I answered "because they really really love each other," and she said "Well I never want to get married because I love my mom and I want to live with her forever." I was amused, but also touched by her opinion. Diana was one of the strongest, sweetest girls I've ever met. May she rest in peace.

Meredith Stapleton
(Camp Sunshine volunteer counselor)

Unknown said...

Hey guys!
I am sorry it has taken this long to reach out to you. I heard of Di's passing when I got home to Florida. I knew you were surrounded by love and I was comforted by knowing that Di was in a far better place and in the arms of Jesus. I know that these long months in PICU were so very hard on you and your family but I enjoyed coming in and saying hi to Di whenever I would return from Florida. I always was surprised by her strength. I loved the way she would squint at me and put her two fingers at her eyes then point to me as if to say,"I am watching you!" She was a hoot, even while facing her situation. I hope that you two have been able to find comfort in your faith, your friends and family, and knowing that you NEVER gave up.

"One day God was walking around heaven and asked Himself, 'How can I make heaven better?' He looked down on earth and saw Di. He reached down and brought her to heaven and said, 'Perfect little angel, you make this a better place!"
God bless,
Ken Mansfield