Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, March 24, 2009

Day + 174

MONDAY-- Dianna had surgery to remove her port...
The surgery was to begin between 2:00pm- 4:00pm, but the surgeon had an emergency-
so Dianna was pushed back to 7:00pm.
The surgeon said the procedure went well-
He removed Dianna's port and inserted a temporary central line on her shoulder.
TUESDAY-- Dianna is very sore, but had a pretty good day.

Sunday, March 22, 2009

Day + 172

Dianna is BACK in the hospital. :-(
Medical City Dallas-- Room # 610
She was admitted on Friday afternoon...
(March 20th- Day + 170)
Friday- Dianna was running a fever of 102.
The doctors ordered many tests to try to find the cause of the fever.
Today, Sunday- the doctor came in and said Dianna would need to have her Port removed...
they found that she has a yeast infection in her port. :-(
(This is something that can happen due to the immune suppression drugs that Dianna is having to take due to the transplant.)
*PLEASE PRAY that the surgery goes smoothly tomorrow. THANK YOU!

Monday, March 16, 2009

Dianna's HOME!


(Sorry that I have not updated lately- trying to get in a routine at HOME.) :-)

**E-mail to friends from Daddy Bret...
This e-mail passes along good news, at 2:10PM yesterday (Tuesday March 3, 2009) Dianna rolled out of Medical City Dallas (rolled down to the car in a wagon).

Picture attached.

Got her home late yesterday afternoon, this experience was reminiscent of bringing new babies home for the first day, every twitch, noise, or action warranted analysis, but we got through the night and mama got some well deserved rest in her own bed.

We will be on a rigid schedule of follow up visits, enough medications to stock our own pharmacy and twice daily blood pressure checks, but that beats being in the hospital hands down.

Once again I pass along thanks to the huge number of family members and friends that kept up the prayers and positive thoughts, your love and support played a large roll in keeping us going and we thank you.

I am sure Nanette will put some news on the blog as time goes on and Dianna gets her strength back so keep looking for updates.

Bret L. Foster

Tuesday, February 24, 2009

Day + 146 (Total days in hospital= 155)

**Mitchell Musso and Dianna**
MONDAY:
"Mitchell Musso"- He plays Oliver on Hannah Montana's Disney TV Show was at the hospital and came to Dianna's room. :-)
Dianna was very excited!
He sat on the couch with Dianna and visited for a few minutes, gave her an autograph and a HUG! :-)
Today, Dianna was still having problems with her stomach hurting. :-(
TUESDAY:
This morning the doctor tried a new medication for Dianna's stomach.
It is to help with the nausea and make her feel a little hungry.
So far...it seems to be helping. :-)

Sunday, February 22, 2009

Day + 144 (Total # of days in hospital= 153)

Dianna is out of the PICU...
she was moved to a room on Friday, 2/20.
She is now in Room 618 in Building D.
Her new phone # 972-566-8718.
Dianna had a good day on Friday, and felt like going to the playroom. :-)
Saturday and Sunday, she has been having problems with her stomach and high blood pressure.
The seizures that she had on Thursday, 2/12- have got her body out of wack...
She is back to having problems eating/keeping things down (food & medications) and high blood pressure. :-(
Please pray that Dianna will begin to feel better and her blood pressure will level out again.

Tuesday, February 17, 2009

Bret's E-mail-- Thurs. 2/12/09

Greetings to everyone who has followed Dianna’s journey, if you are receiving a version of this e-mail twice my apologies, computer issue.

We had a set back today, just a couple of hours before she was scheduled to be released which means that Dianna and Nanette are still at Medical City . This morning Dianna developed a series of seizures and was rushed to the ICU with extremely high blood pressure. We have been given no definite reason why this happened and are still waiting on test results. At this time the blood pressure has fallen back into line and Dianna was sleeping. The events of the day were extremely stressful on everyone but especially so on Nanette.

We are hoping they both get some rest tonight and starting tomorrow we can get back on the track to getting them home soon. In talking with our Associate Pastor and good friend Truett King tonight he pointed out that God was watching out for us by this happening while still at the hospital and not after everyone had come home. Had this happened at home the results could have been much worse.

For those of our great friends who have followed this process and prayed prayers, sent gifts, notes, cards etc I would like to say “Thank You”, these uplifting acts have been good for both Dianna and Nanette.

I am sure when everything calms down Nanette will resume updating the website so watch for more news


Bret L. Foster
District Manager South Central Region
Phone 972-821-7256
Fax 630-438-8006

Wednesday, February 11, 2009

Day + 133 (Total days in hospital= 142)

Dianna gets to go HOME- Thursday!
(Unless something unusual comes up tonight)
*I have been afraid to post this again after the last time and she did not get to go home.
Dianna will still need IV fluids, blood pressure checks, etc at HOME- so Mom has been learning to do all this (we will have a home health care helping/checking me the first week or so)
ALSO- Dianna will have to return to the doctor's office 3 times a week.
If her kidneys get better, then this will be reduced.
BUT- if her kidneys do not get better, Dianna will have to go back into the hospital for another treatment (that will require having another Central Line inserted)
PRAY-- that Dianna's kidneys continue to heal AND that she will not have any more complications due to her Bone Marrow Transplant!