Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, October 20, 2008

Day + 19

Blood work for 10/17/08-
white blood cells: 4.4, red blood cells: 3.10, HGB: 9.2, Platelets: 6, ABS Neut #: 4.136

Blood work for 10/18/08-
white blood cells: 6.6, red blood cells: 2.63, HGB: 7.8, Platelets: 77, ABS Neut #: 5.742

Blood work for 10/19/08-
white blood cells: 8.6, red blood cells: 4.06, HGB: 11.9, Platelets: 7, ABS Neut #: 7.912

Friday:
The doctors wanted to try something different- to help her kidneys & with her high sugar.
Dr. Sher (Pediatric Endocrinology)- wanted to try replacing 1/2 of all the fluids output in her urine.
She thought that it might help with Dianna getting up to potty every hour to hour & a half.
This was in addition to all the other fluids she was receiving.
Dianna received a Platelet transfusion today.

Saturday:
It did NOT work...
Dianna was up every 30 minutes to potty!
ALL NIGHT!!!
And it continued through the day.
She is exhausted! :-(
*So am I! :-(

Sunday:
Still more of the same...
Dianna's getting up every 30 minutes to potty!
Just about the time Dianna gets back into bed and falls asleep, then she wakes up again to go potty.
Poor Baby! I feel so bad for her.
Dianna is so tired that she is not wanting to eat or drink.
Dianna received a Platelet transfusion today.

Pray that the doctors are able to resolve this issue SOON!

9 comments:

Teresa said...

I am so sorry about the kidney/potty issue! I can't imagine how exhausting that has to be getting for her and for you. I hope and pray they are able to figure it out quickly. You guys are in our thoughts and prayers...

Donetta said...

Again I thought I had this figured out but.. Loved seeing the pictures of you visiting the nurses. I know they love you. Snazzy slippers! too many potty breaks huh? Bummer. Just wanted you to know that I was thinking and praying about you. You and Mom try to catch a few naps. Jesus loves you both. Love,Donetta

Anonymous said...

hey sweet girl! i hope you're feeling better today... and i hope they get the whole kidney thing figured out! i LOVED seeing the pictures of you walking to the nurse's station! you are doing SO GOOD!

Kelly Katherine said...

Dear Dianna,

I loved seeing the pictures on your website....you look so cute with your new hair cut! The guys look "cute" too, but I think you are the winner....haha...I am so glad to hear that you are up and walking around. Hope all continues to go well...Am praying for you! love, Martha Howe

Charisse said...

I am heaps sorry that Dianna is having this problem with her kidneys. We have prayer meeting this week and we will pray specifically for Dianna and this problem. Otherwise, you both continue in our prayers!
Love ya heaps,
Charisse

Donetta said...

Just wanted to say hi this morning. Your mom sent me a cute email with kittens and a big heart.
today we are celebrating my husband's birthday, but he doesn't like birthday cake!!! I love seeing your counts go up because I know that means you are feeling better. Now if they can just work on all those potty visits!! Jesus loves you. Sending love and prayers your way, Donetta

Donetta said...

Dear Dianna,
Just wanted to day hi this morning and hoping you have a great day.
Love and prayers, Donetta

Unknown said...

Dianna,

Keep your chin up. We are praying for you every day and every day I see progress on your blog page. I am sure the doctors will find an answer for the too many trips to the potty issue. Know that we love you and are very proud of you. Keep being brave!
Kevin, Brenda, Dusty & JP Latham

Charisse said...

Hi Nanette and Dianna,

I was hoping you guys are going ok. Will continue to pray that things are going ok and the kidney issue is being sorted out :-)
Lots of love,
Charisse