Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, October 28, 2008

Day + 27

Blood work for 10/28/08-
white blood cells: 4.6, red blood cells: 3.79, HGB: 11.2, platelets: 236, ABS Neut. #: 3.910
Today- Dianna did have a Platelet Transfusion (the reason her platelets look so good).
This morning Dianna had an MRI. (no report yet)
She may have another EEG. (?)
Her sugar levels are still high, so she is still needing to be checked about 5 times a day and usually 2 to 3 times requires an insulin shot. :-(
Dianna's blood pressure is still high- still on medication for it. :-(
The past three days- her magnesium level has been low, so this means yet another medication that Dianna must take. :-(
Good News- Yesterday, Dianna was able to have her catheter removed. :-)
Dianna is beginning to switch from IV medications to Oral medications.
The doctors are reducing her steroids; so hopefully the problems that Dianna's having will also begin to be reduced.
Today, her doctor reported that Dianna is now en grafted with her brother's cells.
Now her body should begin making it's own cells and platelets. :-)

4 comments:

Teresa said...

That's so exciting that Dianna is engrafted with her brother's cells! Thinking of you...

Ms. Donna said...

I tried to leave you a message the other day and I can't seem to figure it out, must be cause I'm old!!!
You have been on a rocky road, but maybe some smoother days are coming!
Keep the faith everyone!!

You are in our prayers.

Love, Ms. Donna

Charisse said...

Nanette, I am sorry I missed this post! That is great that Dianna is now engrafted with her brother's cells! I will be also praying that the cells grow very nicely! Yay!
Love Charisse

Donetta said...

Dear Dianna
Loved your Halloween costume! Hey girl hang in there. They will figure out all the things that are giving you some problems. I just want them to hurry up!! Give your Mom a hug for me. Remember Jesus loves you.
Donetta