Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Thursday, October 30, 2008

Day + 29

This morning at 2:30am, Dianna went back to the Pediatric ICU...
She started to have blood in her stool Wednesday around dinner.
It just got worse during the evening.
About 1:30am, Dianna got up to potty then began passing a lot of blood and got sick at her stomach.
As the nurse and I tried to get her back in to her bed- she almost passed out- she went totally limp! :-(
Her doctor order a Platelet Transfusion and Blood Transfusion; then wanted her moved to the PICU.
He wanted to be sure the bleeding was under control and no other complications.
Thankfully- after the transfusions, Dianna did not have any more bleeding. (so far today)
Dianna was able to return to her room on the Transplant Floor today around 12:30pm.
Dianna is NOT happy because the doctors do not want her to eat till tomorrow- Friday around noon.
They want to be sure her gut is healed, if that is were the bleeding came from.
The Doctors do not believe that this was caused by Graft vs. Host Disease, but just more side effects from the chemo, steroids & cyclosporine.

5 comments:

Time to Design... said...

Yucky, yuck, yuck. Chemo unfortunately knocks you down before you get it over with and can start feeling better. Holly & I often joke if this is the cure we are glad we didnt get to the really bad part of the disease! Can she suck on pedialyte pops? They will atleast let her have something in her mouth. :) Thinking of you both and praying for you several times a day. You are brave women and I'm happy I know you!! Hope you feel better soon Dianna. Love, Teresa Harvey

Charisse said...

Hi Nanette and Dianna,
I am so sorry to hear about the bleeding that happened! We will definitely be praying that her gut heals heaps quickly. I am glad that it is not GVHD but it is not nice that it is a side effect. Nanette, I hope you are holding out ok. Thinking and praying for you as well. (((HUGS)))
Love Charisse

Teresa said...

That has to be beyond hard, scary, and stressful for you guys. We're thinking and praying for you! Keep the updates coming...

Hugs,
Teresa

brian busch said...

Hi Dianna,
Paula and I are and have been Praying for you everyday, some days more than that because we love you and your wonderful family and want you to get better. We think of you a lot and want you well enough to go home real soon. God Bless you and we also lift up the doctors so that Jesus will give them the wisdom to bless your health.
Love,
Brian and Paula Busch

Kelly Katherine said...

Hey Dianna,

Sorry to hear you have had some tough days....really praying that things will get better soon, so you can do some fun things. Just want you to know that we are thinking of you often and can't wait til you can come home!

love, the Howes