Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, June 22, 2009

Day + 264

Dianna continues to improve! :-)
She is getting much stronger each day.
Dianna is still on the ventilator, but at a very low rate...
so we hope that she will be able to have it removed soon.
Dianna does have "Shingles"-- on one leg. :-(
(It has not spread-- so the doctors hope that the medication that was started is working.)
Now the doctors are waiting to preform the surgery to insert a new dialysis access till the Shingles begin to heal.
Dianna is down to having dialysis- Monday, Wednesday, Friday & Saturday.
The doctors have stopped the fluid removal on Tuesday & Thursday.
(because of the reduction of IV medications)
Today-- Dianna is OFF all IV drips! :-)
She is only receiving two medications by IV.
Dianna is still receiving her food and few medications through the feeding tube in her nose.

5 comments:

Teresa said...

That's awesome she's doing so well!!! I hope she continues to keep improving and improving. Big hugs and lots of prayers.

Love,
Teresa & Emma (who still talks about Dianna)

Charisse said...

How wonderful that Dianna is doing much better. We have been praying, Nanette :-)
We will still be praying. Praying those shingles go as well because they can be very sore.
Love Charisse

Momma Bear said...

Way to go Dianna! Keep up the good work and heal nicely! Shingles are very painful and I hope and pray they go away really fast!

Blessings and Bear Hugs

Unknown said...

GO DIANNA!!!!
We are still praying, you keep being brave!!

Love,

Kevin, Brenda Dusty & JP Latham

Julia said...

It's so wonderful to hear that you are getting better. God is good. Keep on keeping on.

HUGS from Julia