Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, November 3, 2008

Day + 33


Blood Work for 10/31/08-
White blood cells: 2.5, Red blood cells: 2.59, HGB: 7.3, Platelets: 123, ABS Neut. #: 2.150
Blood Work for 11/03/08-
White blood cells: 3.1, Red blood cells: 3.01, HGB: 8.5, Platelets: 68, ABS Neut #: 2.449
FRIDAY:
Dianna is still having blood in her BM.
First thing this morning at 9:00am, Dianna had a GI Scan.
They put a little chemo. in her blood then put her into the machine to see if they could see where the blood loss was coming from.
She was in this machine for two hours.
(They did not find any signs of bleeding.)
Next, Dianna was sent to have a Colonoscopy and an Upper GI Endoscopy.
She did NOT like this at all. :-(
(They did not find any signs of bleeding, but did take Biopsy to rule out a virus.)



After returning to Dianna's hospital room at 4:15pm-
Dianna rested for several hours.
Finally at 9:00pm-
Dianna was ready to get up and "Trick or Treat" with the nurses...
Everyone had a good time! :-)
SATURDAY:
The doctor came in and said today no tests.
Dianna gets a day of rest. :-)
But still no food...he is wanting to let her gut rest.
Dianna is not happy- she says that she is starving! :-(
She has not been able to eat since Wednesday afternoon.
Finally, last afternoon her IV food arrived.
Still Dianna is not happy, "she wants real food".
SUNDAY:
Dianna is having pain passing the blood clots and her blood pressure was high again.
(The doctors had taken her off the medications by mouth and back to IV)
MONDAY:
Back to oral medications for Dianna
(The IV medications seem to be the reason her blood pressure was so high-???)
Today- her sugar level and blood pressure was much better!
She is still not able to have solid food, just clear liquids for now.
We hope her gut heals soon!

7 comments:

Charisse said...

Wow, you guys have been busy with tests. I am sorry Dianna had to have all those tests :-(
I am glad there are no signs of bleeding though. It is nice to see pictures of Dianna up and about. I hope she can eat soon :-)
Love Charisse

JAMAMUM said...

here's hoping Dianna gets to eat soon! It must be so frustrating for her!
Thanks for all the updates, it is interesting to read, and we are thinking of you guys!
Brooke

Brad and your Moroch Friends! said...

Good Morning Dianna!!
Just wanted to let you know that we thought your hat and costume looked GREAT! Wish we could have gone trick-or-treating with you. I still think that Bret's bald head is the scariest thing in town. Have you learned how to do the hook'em horns sign yet? Any time that you want to make'em laugh, just flash the hook'em horns sign, and laughter will abound. We hope you have a good day today. Thinking about and praying for you...your family too.
Love,
Brad and the Moroch team!

Teresa said...

That's so frustrating that she isn't able to eat! It's for good reason, but I'm sure it doesn't make it easier for her (or you). I hope they figure out what was causing the bleeding.

Loved the photos! Glad she was able to go trick-or-treating.

You're doing an incredible job, Dianna. A transplant is such a difficult thing to go through, but you are so tough and amazing.

Hugs/God Bless,
Teresa

Unknown said...

Diana, sorry to hear that they are still poking and proding you but we are still praying for you and it WILL get better! We love you.

MarMar said...

Dear Dianna,

Loved the halloween pictures of you. Hope you get real food soon, but I know the doctors are trying to do what's best for you. Looks like you have some fun nurses. Take care!

love, the Howes

bailey said...

Hey Miss Dianna,
Can you and your mom believe that I finally figured out how to send you a message? I am so sorry to hear that you are having so much trouble with your tummy:-( I am praying that the doctors can figure out what is going on and get the medicine fixed to be exactly what you need!!! You sure were cute on your Trick or Treat outing with that snazzy matching hat and purse!!! I hope you got lots and lots of candy!! Did you happen to use that small birthday bag you got? Hope you had lots of fun, and it was so good to see pictures of you up and going! I will continue to pray for your speedy recovery and that the doctors get everything figured out for you!!!!!! Sending you lots and lots of hugs and kisses..XOXOXOXOXOX Love you, Miss Cynthia