Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Friday, December 5, 2008

Day + 65 (Total # of days in hospital= 74)

Dianna is still having pain in her stomach. :-(
YESTERDAY:
The doctor ordered a pump for her pain medication.
She gets medication every hour and if she feels she needs more-
she can push a button for extra meds once an hour.
All the tests have not come back yet...
They did find one infection, but it was minor and only needed an antibiotic.
TODAY:
Dianna did receive a red blood transfusion-
It was ordered this morning, but did not arrive till the evening. :-(
**There is a shortage of blood and platelets here!**
Because the transfusion was started late in the day- this caused Dianna's blood pressure to go up! :-(
So then she had to receive extra medication tonight-
I hope that it comes back down!

5 comments:

Charisse said...

Hi Nanette,
that is worrisome about the shortage of blood and platelets there. I am glad she got the transfusion though. Sorry she is still in some sort of pain. I hope they find out what is going on. Still thinking and praying for you all.
Love Charisse

Unknown said...

Hi Dianna,
I'm sorry to hear that your stomach is bothering you. Hopefully it will go away soon. I sent you a couple of early holiday gifts today, hope you like them. Feel better soon.
Hugs,
Sarah

Unknown said...

Hi Dianna,

I hope you can feel better with all those medication. You are such a brave girl. You and your family are always in our thoughts.

love,
Amy Wang's family

Donetta said...

Hi there,
I am so glad you are out of PICU, but I am not glad to hear you are still having pain in your stomach. Hoping it is better today. Just wanted you to know that I am thinking about you guys. You are very brave and pretty tough too. Keep your smile.
Jesus loves you. Love, Donetta

Teresa said...

I'm so sorry about the stomach pain. It sounds awful. That's not a good feeling for them to have a shortage of blood. We hope and pray that everything is going better. We thought of you guys when we were at Emma's appt. Feel better Dianna!!