Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Friday, December 12, 2008

Day + 72 (Total days in hospital= 81)

This week has been just like a roller coaster.
Dianna will one minute feel good/OK, then the next minute feel bad/terrible.
It seems at this time the main issue is her high blood pressure-
due to the use of Steroids and Prograf (anti rejection drug).
The doctors are beginning to reduce the Steroids again-
Also trying to find the right/best combination of medications for Dianna's blood pressure.
Dianna did have a little GVH (graft vs. host) on her skin last week.
BUT- the GVH seems to have cleared. :-)
The doctors said all the tests that they have run for infections have come back clear/good. :-)
The virus that she had- BK Virus (in her bladder/kidneys) is still there, but they feel that her immune system is begging to work.
The doctors said that she probably had this virus before transplant-
Her immune system was able to take care of it till the transplant wiped out her immune system.
The doctors are HOPING that HER immune system will again take care of the virus!
**MORE WAITING!!!**
Blood work 12/11/08:
white blood cells: 5.8, red blood cells: 2.49, HGB: 7.6, platelets: 14, ABS Neut.#: 3.712
(Dianna had a red blood & platelet transfusion this evening)
Blood work 12/12/08:
white blood cells: 5.8, red blood cells: 4.05, HGB: 13.0, platelets: 78, ABS Neut.#: 3.770

7 comments:

Unknown said...

Dianna,,
you are doing such a great job! you will be home before you know it! HUGS
Sarah

Charisse said...

Hi Guys,
you are holding up so well despite the rollercoaster! Still praying for you. I pray that even though you are in hospital for Christmas, that is will be special and lovely.
Love Charisse

Kelly Katherine said...

Dianna,

Am praying that you feel better and better each day. Sorry to hear that you've had a tough week, but I know that you will be well soon! Hope Santa comes by for a visit with you...You can tell him you have been a very very good girl this year!
love, Martha Howe

Donetta said...

Hi there,
An up and down week but you are hanging in there. You guys are tough and I know you will overcome all this. It sure does not seem like Christmas outside. It is very warm and very windy. Still thinking of you everyday and do not worry Santa will find you.
Love
Donetta

Anonymous said...

Hi Dianna,
We are praying that you get well soon. I sent Santa a letter telling him to send you lots of things.
Your Friend,
Savana Duarte

Unknown said...

Just wanted to say hi Dianna,
I hope you are feeling better.
Sarah

txmelodee said...

Hi sweet Dianna,
Just wanted to let you know..we saw Santa pass by a few minutes go...He was going so fast we thought he was a star but I think he now headed to Texas to see a very special girl.

Jeff, Josie, and I wanted to let you know that our hearts and prayers are with you. Tell your momma I wish I could hug her really tight and pray with her. Jeff and I will be talking to sweet jesus to help you feel better.

Merry Christmas Sweetheart!
the Cranks