Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Tuesday, December 30, 2008

Day + 90 (Total # days in hospital= 99)

SATURDAY- 12/27/08:
Dianna had her Central Line removed and had a Port installed in her chest.
The surgeon went in on her left side, but could not get the line in, so he moved to her right side to install her Port.
She is VERY sore. :-(
But this is a step toward Dianna going home.
SUNDAY- 12/28/08:
Dianna was awake EVERY hour last night asking for pain medication. :-(
So- this morning the doctor increased her dose of pain medication.
Today was mostly a day of rest for Dianna.
MONDAY:
Last night was not good!
The line to her port came out! :-(
The nurses said this never happens with a NEW Port! :-(
Poor Dianna!
They had to give her the pain medication orally, then had to insert a new line.
Normally, this would not hurt much at all, BUT this is a new fresh wound and still very tender to the touch. :-(
Dianna was very brave and the nurses were able to insert another NEW line to her port.
Blood work- 12/29/08:
white blood cells: 2.9, red blood cells: 3.49, HGB: 10.4, platelets: 17, ABS Neut #: 1.769
TUESDAY:
Last night was MUCH better!
Dianna only asked for pain medication once during the night.
Today, Dianna went down to the cafeteria with us for lunch. :-)
She ate and was able to keep the food down. :-)
She is STILL having trouble keeping down her pills. :-(
I am being to think that not keeping down the medications/pills is a mental thing.
Blood work- 12/30/08:
white blood cells: 3.0, red blood cells: 2.89, HGB: 8.7, platelets: 12, ABS Neut #: 2.070

2 comments:

Kelly said...

Just wanted to stop in and let you know that we are thinking about you and praying for all of you, especially you Dianna!!
Nanette, I know just how you feel, I remember how frustrated I was when Marshall was in the hospital for so long (5 months!!)It taught me a lot about patience and FAITH and knowing that everything happens in Gods timing. You will soon be like us almost 6 years out and wondering how we made it through, to realize that it was truly God who carried us through it all!!
Hope that your New Year is a great one for all of you.
Love, Hugs and blessings!!!

Unknown said...

Dianna,
I'm sorry to hear about the issues that you've been having with the new port. I agree with your mom, you are getting closer every single day to going home,that is one good thing about it. You are a brave girl. You keep up the good work and you'll be outta there in no time!
Happy new year! This one will be so much better than last year. Stay strong.
Hugs,
Sarah