Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Friday, December 26, 2008

Day + 86 (Total days in hospital= 95)

Dianna & Family- CHRISTMAS DAY 2008!
Madison, Nic, Dianna, Kaelynn, Derek, Ryan, Courtney, Pawpa, Granny
Madison, Nicolaus, Dianna, Kaelynn, Derek, Ryan and Courtney

THE BOXER BOYS! Nicolaus, Derek (Cousin) & Ryan :-)

The Twins-- Kaelynn & Courtney

Madison (Cousin) & Dianna

Santa & Dianna

THURSDAY- CHRISTMAS: Dianna had a nice Christmas! (Even with being in the hospital.) Santa woke her up this morning and gave her some presents. :-) Next her family arrived and we had Christmas in the Transplant Offices. Family present today- Mommy, Daddy Bret, Pawpa Mike, Granny Connie, Aunt Mickie, Cousins- Derek & Madison, Brothers- Ryan & Nicolaus and Sisters- Courtney & Kaelynn. Dianna was laughing and really enjoyed having everyone here with her! She also joined the family down stairs in the cafeteria for lunch (she did not eat). Finally- the nurse changing her dressing on her Central Line in her thigh found that one of the stitches had come out. :-(

FRIDAY: This morning the doctor decided that he would have Dianna's Central Line removed and have a Port placed in her chest. (This is another step toward Dianna getting OUT of the hospital!!!) :-) YEA! She will not be happy tomorrow when she realizes that she is going to have another surgery! :-(

Pray that all goes smoothly with Dianna's surgery tomorrow!

2 comments:

Charisse said...

Christmas looked like fun even though you guys were in hospital. I am so pleased. You deserve to have some fun. Sorry to hear that Dianna must have another op and hope she doesn't mind too much. Praying that it goes well.
Lots of love,
Charisse

Unknown said...

Dianna,
Oh my goodness, there is that wonderful smile, I knew I would see it again! I am so happy to hear that you are doing so much better. You are so strong and you need to know that whatever you set your mind to, you can do, whatever it is. I can't say enough how much I look up to you, even though I am an adult, you are a wonderful inspiration to me and my family. I am so glad that you got to see santa. You are such a special girl and I know that you are on your way home soon. What wonderful news!Keep up the good work Dianna, I am so proud of you for hanging in there when things got tough and being so strong. I hope that your new year is filled with joy and happiness.
Hugs,
Sarah