Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Friday, May 1, 2009

Day + 212

This has been a long week...
TUESDAY:
Dianna had PD only and it worked fine at a low concentration.
WEDNESDAY:
The doctor increased the concentration and fluid amount of the PD...
The wound care nurse was working on Dianna and rolled her on the PD Catheter.
When I returned from lunch, Dianna's nurse said that she was retaining fluid.
But-- when I looked at her catheter bandage-- it was wet and the pad under her was totally wet.
The nurse did not realize that the fluid was leaking from Dianna's incision around the catheter.
The wound care nurse had caused the incision around the catheter to tear.
Now Dianna must stop the PD.
Hopefully the PD will work after her incision around the catheter heals AGAIN.
The doctor said she should wait a week or two before she tries PD.
THURSDAY:
Dianna had to begin regular dialysis today...
She did fine except for her blood did not clot well when finished and Dianna had some bleeding till she was given medication to help her blood clot.
FRIDAY:
Today was fairly quiet...
Dianna was able to get a little rest today.

3 comments:

Teresa said...

That sounds like a hard and frustrating week! We've been thinking so much about you guys and hoping/praying that things are improving. Do they have any ideas as to when they think/hope her kidneys should start working well again...? It's such a hard situation...can't imagine.

Please know you are in our thoughts and prayers. Wishing we could do more. Hang in there guys.

Love,
Teresa

Charisse said...

Oh My! How frustrating in regards to the wound care nurse. A wound care nurse is supposed to help the wound, not do more damage.

Continuing to pray and thinking about you lots.
Love Charisse

Unknown said...

Keep hangin' tough "Little Darlin". We have the prayer army working too.

Love you,

Kevin, Brenda, Dusty, JP Latham