Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, May 20, 2009

Day + 231

This past week Dianna seemed to be doing a little better...
The wound care nurse said that her skin is looking much better
and many of her wounds/incisions have healed.
Dianna was awake most of the weekend. :-)
She was mouthing words and shaking her head- yes & no.
Dianna continues to receive dialysis every other day--
then the opposite days they just remove the extra fluid from her body.
(this is so the doctors can continue to give her extra feeds & medications, without her body becoming too swollen)
BUT --
Monday night Dianna bit through her breathing tube...
The doctors had hoped that they could just remove it and leave it out.
Unfortunately her breathing was not good enough-
so Dianna had another tube inserted into her nose Tuesday morning.
The doctors did an x-ray to be sure it was in the correct position and found that she had fluid and a possible infection in her lungs. :-(
Next another specialist was called in to put a scope down to look in her lungs--
he said that he saw some flem on the left side and took a sample.
NOW today, Wednesday- the x-ray shows something on the right lung! :-(
It looks like tomorrow, Thursday- Dianna will have another scope and they will get a sample from the right lung. :-(
*PLEASE PRAY that the procedure on Thursday goes smoothly and that it is nothing serious.

3 comments:

Unknown said...

Dianna,

I am glad to hear you are awake. I am sorry that you are going to have to have another procedure but glad there are doctors to help you get better. You keep your chin up and know that we love you and are praying for you and your family.

Love,
Kevin, Brenda, Dusty & JP Latham

Anonymous said...

Praying all is well in the lungs!
I am very happy to hear you have been awake.
Keep up the fight!
Krisstina

Charisse said...

Hello Nanette and Dianna,
I did come and read this last week but forgot to write. We have been praying for Dianna at our prayer meetings on Thursday nights. Looking forward to an update on how her lungs looked :-)
Love Charisse