Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Sunday, May 31, 2009

Day + 242

The doctors and nurses are calling Dianna-- Wonder Girl/Super Girl.
She is doing so much better today. :-)
Dianna is off the oscillator and back on the regular ventilator.
She is still receiving dialysis every other day and fluid pull on the opposite days.
Her blood pressure is much better-- still on a little blood pressure medication.
All Dianna's labs are good except for something in her vent tube...
the doctors are trying some different medications to try to get rid of the bacteria.
This morning Dianna had to have a blood clot removed from her leg...
but the surgeon said that it looked OK and did not think it had an infection.
**Keep the prayers coming...
I know that is WHY Dianna is still here with us!
THANK YOU!!!

4 comments:

Charisse said...

Hi Nanette and Dianna! I just wrote an entry but it disappeared. If it turns up as a double entry....well you know.
Isn't God good? We will most certainly continue to pray. Dianna you are definitely supergirl and wonderwoman. You go gal! I am so glad to hear that Dianna is doing better. We are praying, Nanette, for God to give you strength while you go through this journey.
Lots of love,
Charisse

Anonymous said...

Continuing our prayers!
Krisstina, Keith, Jo ( 19 yrs FA-A), Jacy (17 yrs FA-A), and Cameron
www.caringbridge.org/ks/jojacybox

Jenn Darnold said...

Hi 0 just wanted to let you know that we read the site and have been praying often.

We are praying the following verses for you this evening...


"You will keep in perfect peace
him whose mind issteadfast,because he trusts in you.

Trust in the LORD forever,
for the LORD, the LORD, is the Rock eternal." Is 26:3-4

In His Grip,

The Darnold Family

Unknown said...

The nurses and doctors know what they are talking about, what a strong person she is!!! Still praying every day for Dianna and your family.
Hugs,
Sarah