Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, May 6, 2009

Day + 217

SATURDAY, SUNDAY & MONDAY:
Dianna was on CVVH dialysis and did well, except
for Monday night when she was taken off-- she got a fever for a few hours.
Also-- she had a feeding tube inserted into her nose.
She is doing OK with the tube--
the doctors are wanting to get her stomach and bowels working again.
TUESDAY:
Dianna had Hemo dialysis today, but it did not work...
her blood pressure dropped too low, so she had to stop the dialysis.
The doctor is reducing the amount of medications to keep her sedated and
the amount of TPN; but increasing the amount of her feeding tube.
Dianna had a fever again tonight.
WEDNESDAY:
Dianna had Hemo dialysis again today and she did much better.
Reduced-- the amount of sedation and TPN.
Increased-- the amount of feeding tube.
**Still praying for MORE good days!**

5 comments:

Unknown said...

Dianna,

I hope your mommy is reading your messages to you. I wanted to tell you how proud we are of you! You are the bravest princess of all! You keep resting and we will keep praying for God to continue to show doctors what to do to get you all better and back home.

Love,
Kevin, Brenda, Dusty & JP Latham

Charisse said...

We are praying for more good days as well, Nanette and Dianna.
Thinking and praying,
Love Charisse

Teresa said...

Lots of praying for more good days. Can't imagine this rollercoaster you're on!

Big Hugs.

Love,
Teresa

Brad and your Moroch Friends! said...

Dear Sweet Dianna:

I think about you every single day. And you are in the Moroch Team's prayers. We surely hope that you are having a good day today and are finding time for that beautiful smile.

AND, you just tell your Mom and Dad when you're ready for Round 2 of Brad's The Greatest Drawer In The Whole World Contest(I learned how to draw a bear :)

Brad & The Moroch Team!!

The Sumrall Family said...

Dianna,
I just want you to know that I read all of your entries and I think that you are such a brave little girl. I hope that Olivia is just as brave and strong as you when she is in transplant. You hang in there and know that my whole family has you in their prayers!!!!

Love,
Jennifer, Charlie, Dustin, Carmen and Olivia Sumrall