Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Saturday, May 9, 2009

Day + 220

THURSDAY:
Dianna had Hemo dialysis today--
it went smoothly...
BUT the doctor believes she might have an infection in her Peritoneal.
(Running more tests!)
FRIDAY:
YES--
Dianna has an infection in her Peritoneal Catheter! :-(
ANOTHER SURGERY!!! :-(
The doctors want to remove the catheter ASAP,
to keep the bacteria from getting into her blood stream.
Dianna did well with the surgery--
the doctors put her on antibiotics to be sure the bacteria does not spread.
and they are keeping her sedated for the next few days till her wound begins to heal.
BUT------
Going up to visit Dianna after surgery...
Granny (my Mom) fell AND fractured her arm!!!!!! :-(
NOW I have two from my family at Medical City Dallas!
Saturday:
I spent all day running back and forth between Dianna's room and my mother's room.
Dianna had Hemo dialysis again today.
Granny has been in a lot of pain!
She will need surgery on her arm next week...

5 comments:

kking5112 said...

Keeping you all in our prayers!

Unknown said...

Oh my goodness! Nanette, I even know what to say other than we are praying for you all and let us know what we can do to help.

Love,

Kevin, Brenda, Dusty & JP

Charisse said...

Oh my! You are so busy. Praying for both members of the family! AND of course, praying for you.
Love Charisse

Unknown said...

Nanette,
I am so sorry to hear about everything that Dianna is going through, she is such a strong girl. sorry to hear about your mother as well. You sure have a lot on your hands right now. You and your family are in our prayers.
Sarah

Teresa said...

Oh no! I'm so sorry she broke her arm. That's completely unexpected. Your poor mom! I feel so bad for her...and for you. I hope things settle down and that Dianna improves and that her kidneys start working better soon.

Happy Mother's Day to an incredible mother...

Hugs/God Bless,
Teresa