Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Monday, May 25, 2009

Day + 236

PLEASE PRAY FOR DIANNA!
Dianna is NOT doing well...
Last night her blood pressure began going up and down-
The doctor ordered a sonogram of her heart to be sure there was not a problem.
It looked OK.
Also ordered a sonogram of her gallbladder to be sure there was not a problem.
It looked OK.
The doctors have run many different blood tests.
But- the only thing that has shown up is the Rhino virus.
And- the fluid in her lungs (from the x-rays and scope)
It seems that Dianna's body is shutting down.
This morning, Monday--
the doctors said that I need to think about our next step with Dianna...
there is not much more that they can do and feel if her heart stops that we should just let her go...
Dianna is in kidney failure (dialysis), lung failure (breathing machine), and now it looks like problems with her liver and heart are beginning.
I DO NOT WANT TO LET HER GO!!!
But I do not want her to suffer!
Please God take care of my baby!

15 comments:

Unknown said...

Dear Nanette,
I am so sorry to hear about Dianna! I always have you all in my prayers. I will pray that God guides all of you through this process as well as all of the doctors. God is an amazing God and all things are possible through Him. Please continue to hold fast to that belief!! Dianna is such a strong little girl and has pulled through so many things already. She can do this!!!
I will forward this on to the ladies prayer group again and let everyone know how things are going. Just know that you, Dianna and all of your family are in the palm of God's hand.

Love to all and I will be in touch, Cynthia George

Brad and your Moroch Friends! said...

Dear sweet Dianna:

You are loved so very much and have so many people praying for you. You are so strong and we all are very, very proud of you.

Brad and the Moroch team.

Elias! said...

we will be praying for you! Dianna is full of fight and with God's will can get through this. Know that many will be praying for you. Take care!

Wesley's Mom said...

I am stunned. I know Dianna has had many, many issues but I didn't realize the doctors were in that frame of mind. I am so, so very sorry. But you are both fighters and Dianna has overcome so much already. You are in my prayers.

3BoyMom said...

Nanette and Dianna,

I continue to ask God for healing. He is good, all the time. May He hold you especially close during these days.

~Allyson Hendrickson

Anonymous said...

We are very shocked at this turn of events! We are praying for Dianna's fighting spirit to take over. We are praying for your family!!!

Krisstina, Keith, Jo ( 19 yrs FA-A), Jacy (17 yrs FA-A), and Cameron
www.caringbridge.org/ks/jojacybox

K said...

I am in shock as well! I am sorry! I know Dianna is a fighter, and she has such a strong mom! I have you all in my thougths and prayers!!!

((((HUGS)))
Kayla

Michelle Colgan said...

Nannette,

Please know Dianna is in our prayers.

Michelle and Alicia (FA-A)

Unknown said...

dear Dianna,
we r sending u all are strength love and prayers. we wish we could be with u.


love, Frankie(FA,40) and Adonia

Unknown said...

I have no words.

We love you and are still praying that God's will be done and whatever that will is, that He will carry you through it.

Toni Smith said...

Dear Nanette, Bret, Dianna & family,

We love you all and are praying for all of you. May God's grace and mercy blanket you during this difficult time. Much love & care, the Smith family, Steve, Toni, Chad & Nikki

Judy said...

I am so sorry to hear about Dianna. I have been watching your site, but not posting, mainly because I still have a problem with that since my son passed on. I know exactly what you are feeling and I will be praying for you and for your daughter. Praying for strength for you, and healing for her. Hang in there, God is with you, and He will never leave you.

Charisse said...

Dear Nanette,
I am really sorry. I didn't see this update. We have been praying for Dianna at prayer meeting on Thursday nights! We will be still praying for her and not just at prayer meetings. I can understand, full well, you not wanting to let Dianna go! God is amazing and sometimes we just don't know what is going on. I tell myself over and over again that He can do anything. He can do the impossible.
I have been looking at something in the Bible and want to share it with you my love.
Psalm 18 verse 2 and continuing:
"The Lord is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge, He is my shield and the horn of my salvation, my stronghold. I call to the Lord, Who is worthy of praise, and I am saved from my enemies. The cords of death entangled me; the torrents of destruction overwhelmed me. The cords of the grave coiled around me; the snares of death confronted me. In my distress I called to the Lord; I cried to my God for help. From His temple He heard my voice; my cry came before Him, into His ears".

Then if you read on it talks about how severely God deals with "my" enemies and how he rescues "me" or "you". Following on at verse 17

"He rescued me from my powerful enemy, from my foes, who were too strong for me. They confronted me in the day of my disaster, but the LORD was my support. He brought me out into a spacious place".

Jesus loves us SO much. I don't understand why we suffer with FA. I don't understand why these things happen. However, in our distress, God does hear us and He does rescue us. Sometimes I don't understand how He does things.....but this promise listed here in God's Word is that He will rescue us and lead us out into a spacious place when the enemy is too strong for us. That spacious place is a place where we can breathe and relax. I pray that for both Dianna and for you right now. I pray that for your family. I speak it over you in the Name of Jesus.
Know that my heart is with you, Nanette. We are praying. I know it is SO hard to be comforted when you are distressed. I know this all too well. We are praying.
Love Charisse

Teresa said...

Nanette...

I've read your more recent post, and what a blessing things are improving. I hope they continue to improve drastically and that you'll be far from any danger. fA can be such an awful disease. This post made me cry thinking of everything you've all gone through and are going through. I know there is nothing any of us can say or do that will fix it or make it easy for you, but just know you're in our thoughts and prayers. We pray that the Lord will watch over your baby girl and keep her safe and keep her here....and give you all the strength and endurance you need.

Much love,
Teresa

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