Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, August 19, 2009

Day + 322

Tuesday:
The doctors took Dianna off the CVVH (dialysis machine)...
they want to try her new graft on the "regular" dialysis machine on Wednesday.
If the new graft works...
they will take out the old "temporary line" which is good
(one less area for infections).
ALSO--
Dianna is NOW on such a low setting on the ventilator...
the doctors are going to try to take her off the vent in the next day or two! :-)
Dianna did have a little fever today...
please pray that she does not have an infection.

7 comments:

Charisse said...

We will certainly pray there is no infection :-). It i good to hear good news.
Love Charisse

Melissa G said...

Sending a wealth of love and hugs!

Unknown said...

Good, good, good!!!! Sounds like Miss Dianna is doing better with each passing day!!!! Praise God!!!! I will definitely continue with the prayers, particularly in regard to no infections and for that fever to go away! Nanette, I am so proud of you for all of your strength and stamina through all of this. You are such a wonderful mother!!!!! You and your dear precious daughter are such a testament to God's love and power to all of us following your battle! Keep looking UP!!!!! Hope you both have a good day today!!!!!

Sending lots of love your way,
Miss Cynthia

Karlysmom said...

Y E A H G O D ! ! ! ! ! ! !
We're so happy to hear your good news!!!!! :) Hope to hear lots more in the days to come. Dianna is such a little fighter. Stay strong and know that you are loved and cared about!!
Hugs,
Nancy Ross

Wesley's Mom said...

Keep kicking butt girl!!!

-Kristin

Donetta said...

Great news. Dianna is awesome. Praying for no infections and continual healing.
Love,
Donetta

Unknown said...

Dianna and Nanette each day you have been in my thoughts and prayers love to you all Aunt Deborah