Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Sunday, August 23, 2009

Day + 326

Wednesday--
The "new" dialysis site (fistula) works great! :-)
Thursday--
Dianna did have an infection in the "old" dialysis line.
(That IS what was causing the fever.) :-(
Friday--
Dianna had dialysis in the morning, then...
Another SURGERY to insert a "pick line" into her right arm.
After she was back into her room and the nurses made sure the pick line worked...
they removed the old dialysis line and the art line.
Due to the infection the doctors had to increase the rates on Dianna's ventilator. :-(
(Yes-- Dianna is still on the ventilator.)
This weekend they're working on weaning her back down to a lower setting.
Please pray for no more infections and getting off the ventilator.
Thank you for ALL the prayers!!!

7 comments:

Teresa said...

that's so awesome! i hope and pray she continues to improve and that they can get her off the ventilator. much love and prayers to you guys! we missed you so much at Camp. hopefully next year? :-)

Love,
Teresa

Anonymous said...

That is wonderful news!!! We will continue to pray for her and your family!!! Lots of Hugs!!
Krisstina, Keith, Jo ( 19 yrs FA-A), Jacy (17 yrs FA-A), and Cameron
www.caringbridge.org/ks/jojacybox

Martha Shultz said...

Nanette and Dianna,

I am so glad to hear good news. Dianna, you are a strong girl! Keep smiling! Nanette, I am praying for you and Dianna today. Love you!

Martha

Momma Bear said...

Hey Dianna! Nicholas has had a PICC line for two years now.....yes, the same one! He has had 5 total but the last one has lasted the longest! Hope and pray all works well for you! Hang in there! Love you all!

Blessings and Bear Hugs,

Unknown said...

Man, I get nervous when you don't show up for work. I pray that everything is fine. My wife and I are continuously praying for you all. God's glory will been shown, just have faith.

Unknown said...

Hey Nanette,
I just found the update and that is wonderful!!!! I am so proud of Dianna! I knew she could do it!!! That is so awesome that the new line is working so well!!! I will continue to pray that she not get an infection and that ya'll are headed for smoother waters! Ya'll are continually in my thoughts and prayers. Keep looking up and as always, God is in control!!!!!!! Please give little bit a hug and kiss from me.

Sending hugs and lots of love,
Miss Cynthia :-)

Melissa G said...

Love and Prayers for continued recovery---