Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Thursday, November 6, 2008

Day + 36



Blood work for 11/06/08:
White blood cells: 5.9, Red blood cells: 3.48, HGB: 9.9, Platelets: 41, ABS Neut. #: 5.251
TUESDAY:
This morning Dr. Lenarsky said that Dianna could now try "soft foods" but NO milk products.
This still does not make Dianna happy, because many of the foods that she likes have milk products.
WEDNESDAY:
Last night Dianna began to get a fever.
The doctors started her on a couple of antibotics and Tylenol.
Today, it got up to 104' around 1:30PM.
She was given more Tylenol and it started to come back down.
Finally, about 7:00PM it was down to 99'.
Dianna slept most all day today till 7PM, then had a hard time going back to sleep at bed time.
Finally went to sleep around 12:00AM.
THURSDAY:
Dianna did not want to wake up this morning after going to sleep so late.
At least she does not have a fever today. :-)
But all the extra medication has been hard on her kidneys again. :-(
The Kidney Specialist came by to see her and ordered more tests today...

3 comments:

Time to Design... said...

Hey there beautiful girl! Love the picture of you & your new Teddy Bear. Just adorable. Keeping those prayers going and hope tomorrow is better than today!

Much love from the Harvey family. :)

Donetta said...

Dear Dianna,
Wow! That is the biggest bear I have ever seen. Still loving your smile. I am so glad you got some sleep and that the fever is down. Just wanted to say hello and let you know that we are thinking about you. Hope you find something you like to snack on. Jesus loves you. love, Donetta

bailey said...

Hey sweetie,
I think that is the cutest teddy bear that I have ever seen, but I think the young lady who is hugging it, IS SO MUCH CUTER!!!!!!
I am so sorry that you were running a fever, but glad to know that it has gone down. I hope that you will get some good sleep tonight and have a better day tomorrow!! Hoping you can find some foods that you like since you are at least able to eat soft foods!!YEAH!!!!! Continuing with the prayers and thinking of you everyday. Love you, Miss Cynthia:)