Welcome to Dianna's webpage.

It has been provided to keep friends and family updated on her life with Fanconi anemia (FA).

Dianna was diagnosed with FA in April 1998.

FA causes aplastic anemia (bone marrow failure), as well as many different types of cancers.

She had a few of the obvious signs of FA: missing both thumbs, deaf in her right ear, very small for her age, and had corrective surgery at birth on her intestines.

Dianna had a sibling donor bone marrow transplant at Medical City Dallas, TX.


Transplant date: October 1, 2008

Dianna went to heaven September 1, 2009

HOME:

126 Edgewood Dr.
Lewisville, TX 75067
Phone #: 972-436-4816

Normal Blood Count Range:
White blood count: (normal 4.5-13.5)
Red blood count: (normal 4.0-5.20)
HGB: (normal 11.5-15.5)
Platelets: (normal 140-440)
ABS NEUT#: (normal 1.50-6.50)

Wednesday, November 12, 2008

Day + 43 (Total # of days in hospital= 52)

Blood work from 11/12/08-
white blood cells: 3.4, red blood cells: 3.57, HGB: 10.6, platelets: 23, ABS neut: 2.720
Blood work from 11/13/08-
white blood cells: 3.3, red blood cells: 3.40, HGB: 10.3, platelets: 101, ABS neut: 2.178
TUESDAY:
Dianna ran a fever all day- so all she wanted to do was sleep. :-(
WEDNESDAY:
Dianna is still running a fever. :-(
Dianna received a platelet transfusion.
Dianna has two virus- BK Virus and Adenoviral (ADV).
Dr. Goldman wants to start her on "Cidofovir" (it treats viral infections- she must take by IV 3 times a week for 3 weeks).
Before taking the Cidofovir (CDV)- Dianna must take "Probenecid" to help prevent renal failure (by mouth- 3 hours before and 1 & 8 hours after CDV).
Also extra IV hydration at 3 times, beginning 1 hour before and till 1 hour after completion.
THURSDAY:
Dianna is STILL running a fever! :-(
Last night she was not able to keep anything down-
The doctors have switched her back to IV medications again. :-(

5 comments:

Teresa said...

I'm so sorry for all the stress you guys are going through! We hope and pray that the fever clears up quickly and that her kidney(s) handle everything. You guys are in our thoughts and prayers.

Love/God Bless,
The Clifton's

Unknown said...

Diana,
I am going to pray specifically for these infections to get out of you and that your recovery will speed up. The neighborhood misses you! We love you and are praying for you and your family.

Love,
Kevin, Brenda, Dusty and JP

JAMAMUM said...

I am so sorry to hear you are not doing so well, Dianna.
We are thinking of you and hope you feel better really soon.
Love
Brooke, Paul and Jasper
from Australia

mikel said...

we prayed for you at 2.10 wednesday, dianna. all the students are praying for you this week too. i'm thinking of you every day! love you.

mikel

Charisse said...

I am sorry that Dianna is having such troubles with fevers and viruses. Praying that things will get better. (((HUGS)))
Love Charisse